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Where I am coming from

User
Posted 19 Feb 2016 at 05:02

Dave I agree totally with Barry comments.

You have spread the word about PCa and helped men to get a test. I am aware of two men who have been diagnosed with PCa since I started banging the drum. At first I felt a strange sense of guilt about their dx....but they were so happy for it to have been caught early which gives them a chance.

Whether men go on to have treatment is a matter only they can decide upon . But it's up to their medical teams to give them all the information for them to be able to make a well informed decision.

I am in two minds about a screening programme but I do think people need educating and unfortunately this applies to a significant number of GP's.

Keep posting and keep spreading the word

Bri

User
Posted 19 Feb 2016 at 22:41
Hi Dave ,

It was just one disturbed poster and I have my own theory as to who that was ( but and you know I love a but one bad apple as the saying goes ).You have got a lot of support on here so please don't feel that you have got to justify yourself by apologising, you have nothing to apologise for.

We all have our seperate opinions and views , as long as it comes from the heart what does it matter right or wrong.

Oh dear the PSA testing debate will probably go on , well it will go until a more reliable test is developed. I was a bit like you in the beginning , everyone should have a PSA test banging the drum and trying to shout it from the rooftops. Then I calmed down and actually looked at the stats and like you thought just how many men would be having treatment that they didn't need.

But and here I go with my but any test for any kind of cancer doesn't tell you if it is a pussy cat or a tiger, I am just going to name a few but there are so many others, cervical cancer the smear test only says that there are abnormal cells it is not until invasive tests are done that a dx or an all clear can be confirmed. Worst case scenario a woman can't have children actually scrap that comment , worst case scenario is mother of two dies of cervical cancer.

Breast cancer on a mammogram can only be confirmed with a biopsy .

Yes I do understand that some treatments for PCa are horrendous BUT honestly I have never heard of a case were there was no cancer found. Maybe I am looking at things too simplistically. I will take all view points on board.

So national screening would get my vote, along with bowel, breast, and cervical there is probably others that I am not aware of they get my vote as well.

I vote for life and yes if those who want to opt out then they don't have to have any more treatment, no one forces treatment . We all make choices in life.

We can all sit here banging the drum ( if only there was a different test for PCa) well no there isn't this is the only one that we have at the moment. Choose it or loose it.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 20 Feb 2016 at 21:58

Hi Dave,

 

You said

"In various posts and private messages I have recently been criticised, perhaps correctly, for being arrogant, patronising and unfeeling."

 

I nearly spluttered a cup of tea over my keyboard on reading that because nothing could be further from the truth.

In all the years I've known you, you have done everything to kindly help and advise members on here.

 

You really should not feel the need to apologise.

I think people can be often totally unaware of all the work done quietly, such as answering emails from worried guys and/or their partners, which is in addition to posting replies on the forums.

This goes on unnoticed every day, and on top of that help given, there is yet another side - the support work done in our local groups.

 

Carry on as always Dave,

You're a good guy!

 

 

George

 

By the way, I'm not a fan of the Private Message system here either. I've now read too many disturbing comments about it.

 

 

User
Posted 09 Mar 2016 at 17:57

Hope it's not too late to reply.

I had a PSA test as my father has had PCA for about 18 years and was recently diagnosed with secondary cancer in the bones and his GP believes in his brain. I was confident that the PSA test would come back OK, but told my GP that I was uncertain if I would have treatment even if it was high, as I was aware of the side effects. Unfortunately, it came back as 11.5, but a DRE showed the prostate as normal. I am having a scan this Saturday and then a biopsy; the type of biopsy will depend on the results of the scan.

So I don't consider posts about not having treatment as inappropriate as it might be the best course of action to take.

User
Posted 09 Mar 2016 at 18:35
Never too late to reply. Good to have your input.

I hope all goes well for you all.

John

 
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