So, today was a tale of two halves.
In the morning, I was in St Thomas' having an EMG test on my right shoulder. Move forward via shuttle bus to Guys..........
It's been 15 months since my last scan. CT shows slight increases in 3 of the 4 nodes but one has curiously shrunk!?
THE GOOD NEWS, NO, THE BEST NEWS IS THAT THE BONE SCAN IS COMPLETELY CLEAR!
The challenge is to reduce the T as this has risen again to 3.7 from 2.7 last month.
I asked the ONCO and she said I was a challenging case who is not following any orthodox pattern. I told her not only was I beautiful but also beautifully unique. She agreed.
The plan is to come off Enza immediately as she feels it may now be causing T to rise, reserving the right to go back in it if felt appropriate. I'm also changing back to Prostap with review and bloods in one month with the possibility of Decacapty or Degarilixl as the next cocktail. Oh, I was also offered an orchiectomy. I said Bollocks! She thought I might say that. Despite the PSA rises, there has been a huge period of time since my last scan so she is encouraged by the lack of cancer progress. The challenge is to put a lid on the rise in T.
Suggestions on a postcard.
I feel a sideways kind of celebration so am opening an obscenely expensive bottle of wine tonight and my eldest daughter is cooking a meal for the whole family.
Bliss