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Scared for my dad

User
Posted 24 Feb 2016 at 17:53
Hi there, I know what your going through as last April my dad was diagnosed with advanced prostate cancer 3 days before his 66th birthday. It was a massive shock to us all, as rather stupidly I thought it would never happen to us! And yes we spent days crying but never in front of my dad. My dads psa was 1300. He had all the scans etc and found out the cancer had spread to his bones. The only place it isn't in is his head, legs and arms. He started on hormone therapy and within a week it had come down to 800. At his last appointment it was 0.04 I think. My dad got accepted on a trial, not really sure what it's called I just know he takes tablets everyday and steroids. For the first 6 months he had to have his blood pressure and a bloods tested every 2 weeks. He had radiotherapy on his pelvis and leg as he was getting a lot of pain think it stems from his hip. Unfortunately this made the pain worse almost unbearable and they had to go on holiday the next day. In a few cases this can happen before it gets better. They managed to get there with the help of liquid morphine. He was getting a lot of back pain so had a scan to see if something was pressing on his nerve and maybe need more radiotherapy but onco said he didn't need it. It's a long journeys of highs and lows and life will never be the same again, but you have to stay positive. I find reading these posts make me feel better as I know other people are going through this nightmare as well. I worry as he has had back pain just recently does this mean it's growing agin? He hasn't got a hospital appointment till March. He's seems ok in his self, fed up of the hot flushes but at least he's still here. He recently got diagnosed with glaucoma and the drops he takes can give a high psa reading! You have to remember that there are lots of treatments available and when one stops working hopefully another one will. Be positive and enjoy every day with your dad. Cry when he's not there as what he is going through inside must be awful.

Anna xx

User
Posted 24 Feb 2016 at 20:55
Thanks Anna, your post is so like I feel. Dad went back to work on Monday and it's doing him the world of good 😊 We are all away together for a few days from tomorrow and although I'm looking forward to it I'm sad too.

Like you I'm really strong in front of dad but then I think that makes me seem a bit hard too ?

Let's keep in touch I wish your dad well xxx

User
Posted 24 Feb 2016 at 21:12
Hi Dawn I don't think it makes you seem hard. try and carry on as before as I'm sure he doesn't want to keep talking about it. I just let my dad talk about it if he wants, which he doesn't really. We laugh about his sweats and brought him a fan which he uses. My dad retired, just some odd jobs here and there he finds it hard as he gets aches and pains and sometimes his leg feels weak and like rubber. He and my mum go out and about quite a lot and are away for a few days. It does get slightly easier as you come to terms with it. But I think about it every day. Enjoy your few days away and try not to let this horrible cancer get in the way of enjoying quality time with your family. Your dad will feel much happier knowing he has all your love and support. Yes it would be lovely to stay in touch. Hope everything goes ok for your dad. Xx

Edited by member 24 Feb 2016 at 21:13  | Reason: Not specified

User
Posted 25 Feb 2016 at 06:11

hi ladies I am writing this as a dad

my own daughter doesn't tell me a lot how she feels, she doesn't want to discuss it all the time as she gets upset and doesn't want to upset me, I can live with that odd times she will ask me a question which I will answer truthfully but I do not linger on the subject

I know how tough it is for you seeing your dad unwell. as he is the man who has always seemed invincible, just take it as read we know you love us and we (dads that is)would give anything to take away your worry

life is never going to be the same again but as piglet said to winnie the pooh

Piglet: ’’How do you spell ’love’?’’ Pooh: ’’You don’t spell it...you feel it.’’

 

regards

nidge

 

 

 

Edited by member 25 Feb 2016 at 06:14  | Reason: Not specified

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 25 Feb 2016 at 06:16

some more from winnie the pooh which tend to sum up a lot, and I must admit they brought a tear to my eye

 

http://brightside.me/inspiration-relationships/20-profoundly-important-things-we-learned-from-winnie-the-pooh-102455/

Edited by member 25 Feb 2016 at 06:18  | Reason: Not specified

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User
Posted 25 Feb 2016 at 07:50
nidge, bought a whole load of tears to my eyes!! and yes I did think my dad was invincible, your words are so true. I can't imagine what it must be like for you and my dad and anyone's else's dad to be going through this, and your feelings inside. But just know that we do love our dads and just wish we could go back to that time when life was normal.

Anna. Xxx

Edited by member 25 Feb 2016 at 07:54  | Reason: Not specified

User
Posted 25 Feb 2016 at 21:52
Nidge, such lovely words thank you so much.

We are all away together now and as lovely as it is the elephant is still in the room.

This is such a surreal time just want to wrap dad in cotton wool but at the same time need him to be the strong indestructible dad he is.

Love to you all xxx

User
Posted 26 Feb 2016 at 09:47
Hello Dawn & Anna,

I'm just reading through your posts& I am so sorry that yourselves & loads of other families are going through this,can relate to everything in them,I could have written it myself about my dad just diagnosed 25th Januay,only a month ago with advanced prostate in his bones, it is heartbreaking,we are awaiting outcome of his bone scan on Monday,but since then he has had 2 falls& on Tuesday split his head,ambulance out glued& stitched,refused to go into hospital,but now worrying it is spinal chord compression. It's just a nightmare. I hope you get some strength knowing I am thinking of you's,I do know what it's like as a daughter too

Much love

Eleanor x

User
Posted 26 Feb 2016 at 10:27
Hi Eleanor, so sorry to hear about your Dad. This is such a cruel disease and so often it hits families without warning. Please keep me updated on your dads progess. Sending you all lots of love

Dawn xxx

User
Posted 26 Feb 2016 at 18:04
So sorry to hear this Eleanor, it truly is heartbreaking having to go through this. It is strangely comforting to come on here and find strangers going through the same thing as you. It can sometimes feel very lonely being left with your thoughts. I hope everything goes ok with your dad and remember to stay positive as it's the only thing you can do.

Anna xxx

 
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