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The journey begins

User
Posted 10 Oct 2016 at 20:17

Well today I went for my six month checkup. Expecting good news but it seems not, PSA has risen to 1.1 (as against 0.23 in April). She doesn't know whether it is a result of stopping the hormone injections after the January one or whether there is a problem which will need further scans so I have to go back in 2 months time. The blood test form which she gave me has as well as PSA my blood count, liver and calcium tests, has anybody else had those which don't seem much to do with the prostate?

But she did comment that I looked very well - and in fact I do feel almost back to my old fit self today - and with the minor urine and bowel symptoms I described seemed not too worried. Time will tell, but it is certainly not time to celebrate quite yet...

Dave

User
Posted 10 Oct 2016 at 20:58
Dave,

The blood tests I have are - Creatinine & electrolytes, LFT, FBC, testosterone as well as PSA

Arthur

User
Posted 05 Dec 2016 at 16:07

Just back from my latest appointment with the oncologist. PSA back down to 0.35 from 1.1 in October so very pleased - 10 months after end of RT and Prostat HT. They will continue to monitor with next appointment in 3 months. Nice Christmas present!

Dave

User
Posted 06 Mar 2017 at 20:01

Just an update, had my latest appointment at Royal Berks. PSA risen very slightly to 0.4 but still very much what they call 'stabilised' so everything looking good. Next one in September. It was interesting re-reading all that I had posted on here over a year ago when I was having the RT and it is good to know that all that is now behind me. More significantly, whereas then I was popping to the little room 8-10 times during the night, and seeing all hours on the clock, I have now got that down to a far more respectable 2-3 trips, even oversleeping at times. Little things that say I am largely cured, and I have been far more fortunate than some of the others that post here. PC CAN be cured - provided it is caught in time.

User
Posted 06 Mar 2017 at 22:39

Excellent news - congratulations

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 04 Sep 2017 at 17:59

Just back from my latest checkup. I was a little concerned that things may have gone the wrong way as I have had a few small issues with the waterworks lately (and an attempt to wean me off tamsulosin showed me very soon that I DO still need it). But I was very pleased to find my PSA is now 0.45 (as against 0.49 in March) so very much going in the right direction. And despite having virtually no libido the testosterone is back to normal levels. Next test in six months.

So encouragement to those who have just recently been diagnosed, PC CAN be cured...

User
Posted 05 Sep 2017 at 15:56

Dave, I don't want to dampen your spirits, but talk of "cure" with PCa is unwise. At PSA levels below 0.1, it is possible, but not certain. I judge that at your reported levels, you may not have seen the last of it. My personal nadir was 0.3 about eight years ago and I'm 1.1 at present. That just serves to illustrate my point. Nevertheless, get on with your life and know that there are loads of treatments to help you prolong it, should the PCa resurface.

Good Luck

AC

User
Posted 12 Mar 2019 at 08:23
Had my 6 month check up yesterday. PSA seems to have stabilised around 0.48 so I have now been discharged from the hospital with annual PSA checks to be done via my GP. Symptoms largely gone now and in good health - last autumn I walked the Capital Ring around London and have just started the longer London Loop and quite enjoying it. Fingers crossed my PSA will stay low.

 
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