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Husbands diagnosis

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User

Posted 03 Feb 2016 at 21:41

Just a update hubby had his onco app Monday for blood tests and weighing when they shouted his name his oncologist was in doorway as we went through he shook our hands and he said he just wanted to see how my hubby was walking after his 1st chemo as the nurse was weighing him the oncologist asked me how he been with his first cycle I said fine apart from headaches & constipation he said that's good nothing too bad then
We had a good chat with him and he was pleased with how things are going hubby had put weight on and he told him his PSA level was now down to 2.6 so things are going in right direction
So today he had his 2nd chemo so hopefully we have some more good news in 3 weeks
Yorkshire lass

User

Posted 03 Feb 2016 at 22:57

Thanks for the update Yorkshire Lass. Glad it all seems to be going on the right direction

We can't control the winds - but we can adjust our sails

User

Posted 04 Feb 2016 at 08:42

Glad to hear your respective men are making progress., Harmony and Yorkshire Lass. I know what you mean about the hygiene, I got a bit concerned about that and kept spraying things and sterilising things, etc. The mistake Tony made was right at the end of treatment (you can get a bit careless) he attended a children's concert to see our grandkids perform. It was last March, still the seaon of runny noses, and he picked up some infection. There were no normal symptoms and he didn't feel really unwell, but noticed he was hot. We took his temperature and it was past the danger threshhold, so he had to spend three days in an isolation ward being pumped full of antibiotics, in case it was a bacterial infection, which can kill.
So get youselves a thermometer, and keep away from crowds of small children!

User

Posted 04 Feb 2016 at 12:02

Hi Yorkshire lass

Good news, pleased to hear hubby's doing well. Hope it continues with chemo no.2.

Marge, glad to hear I'm not the only obsessive wife. I've even bought bob a 'pair of marigolds'for any extra cleaning he wants to do! Ha ha.

Best wishes

Lesley x

User

Posted 04 Feb 2016 at 19:01

Thank you all for you're comments it's good to know we all going through the same so these comments really help
At the moment he really does feel fine we know it can't be cured only maintained so taking each day as it comes
Thanks
Yorkshire lass

User

Posted 04 Feb 2016 at 19:42

hey up yorkie
yep you ae doing the right thing one day at a time, eventually you will be able to look ahead but not to far, as we all worry whats round the next bend

good news on the PSA

regards
nidge

run long and prosper

'pooh how do you spell love'

'piglet you dont spell love -you just feel it'

User

Posted 04 Feb 2016 at 21:27

Hi Yorkshire Lass,

My husband has Pca too, diagnosed in 2014 aged 47. I really symapthise with that rabbit in the headlights feeling. Keep up the hope though, there are some very amazing and encouraging stories on here. I have come to think of PC as the same as having a long term medical condition instead, which has to be monitored and managed, but which can be treated for years.
Hold on to the hope, and all the best to you and your husband
x

'Sorrow looks back, worry looks around, but faith looks up'

User

Posted 06 Mar 2016 at 18:02

Well hubby had 3rd chemo and next week he be having his 4th his 3rd session has been the worst up to now he's had a lot of pain in his legs back hands feet in fact all over his body one of the days he had really bad pains in his testicals which wasn't a nice thing for him he felt like he'd had a good kicking it's awful to see you're loved one suffering but he said he carry on fighting
The good news is that his PSA level is now down to 1.7 so that's giving him a good reason to carry on also
He's just started to feel ok this week with just the occasional headaches
So roll on next week for round 4
Yorkshire lass

User

Posted 06 Mar 2016 at 19:04

I wish him well in hi fight Yorkshire Lass

We can't control the winds - but we can adjust our sails

User

Posted 06 Mar 2016 at 19:55

Hello Yorkshire Lass

I'm not sure how I missed your thread, but I am a fellow wife of a metastatic cancer sufferer. He is a Gleason 10 with spread to lymph and bone. We have not had any chemo or any of the new drugs in the five years we have been dealing with the illness. And yet, all remains reasonably well. I think this cancer is a mystery, men with a Gleason 7 sicken and pass away in shorter times sometimes, I'm no longer sure what the Gleason score really means (I mean I know what it means but it doesn't always reflect the actual aggressiveness of the cancer, our urologist told me this and I think it's true). On diagnosis 5 years ago early chemo was only for people on a trial, the trial results showed very promising results for early chemo and there is the fact that the man is younger (than if you wait till things get worse) and less debilitated by long term HT use, it makes sense.

What I have found, five years in, is that the toll the treatment and stress has taken on both of us has been substantial. I have had to go on sick leave from work as John now needs help with dressing and other things. My own health has taken a hit, I found it impossible to continue giving my usual service at work and the stress of that was horrendous. I do think that these are the things that are somewhat hidden with a diagnosis of cancer (or other long term illness), both for the sufferer and their family. I have a close friend who's hubby had throat cancer, and who is in remission. However, repeated surgery, chemo and RT to the head area has caused a lot of damage and he will never work again, he is not the same person, he has lost his gag reflex and often chokes at night and is blue lighted to hospital regularly. Though he is "cured", his cancer has had a major impact on him and his family and much of that is hidden from people, who think, wow he is cured, that's great.

This is one of the reasons I feel lucky that "our" cancer is not generally found in the head region, thankfully most men can live a reasonable life with it for quite q period of time (not all I'm sad to say). Someone with mets isn't going to beat this cancer but you can live a good life. Our life is good despite what I've said above and I am very grateful for every day we have together.

You sound like a very loving person and I'm glad you found us, someone is usually around to offer advice, support or solace.

With love

Allison xxx

User

Posted 06 Mar 2016 at 19:56

Keep going gal, 1.7 is great at this stage. it is tough for him but when the going gets tough, the tough get going. Wish him well from everyone here. He's clearly a fighter. I hope he comes through the next treatments in good heart.

AC in Northants

User

Posted 06 Mar 2016 at 22:15

I'm on start of week 3, chemo cycle 3 and this is the good week! Energy is pretty strong and I even had a good sleep last night. Just have to be careful not to overdo it.
I was told that the bone pains are a good sign, it's the chemo working. Not sure if that is correct but I like the idea of it ☺
My PSA is also coming down a lot so fingers crossed.
The early chemo tratment is worse than my earlier symptoms but I guess you have to give it a go based on the trial results.

Martin

"And Rocky said, doc it's only a scratch. And I'll be better, I'll be better doc as soon as I am able"

User

Posted 07 Mar 2016 at 18:52

A big thank you for you're replys it really helps as we all are on this journey and sharing our fears
Yorkshire lass

User

Posted 12 Mar 2016 at 23:34

Hi Yorkshire lass

Sorry bit of a late response to your latest update. It's great to see that your husband has responded well to his chemo with psa coming down.

Bob has not long had his 3rd cycle, not done too badly with side effects. Few bone pains and fed up our house 4 walls. Still has head of hair and although not noticeable it is thinning and coming out. Will update more on own thread.

Great to see others good reports also.

All the best to all

Lesley xx

User

Posted 15 Mar 2016 at 19:54

Thanks Lesley
My hubby going for chemo no 4 tomorrow his hair started to come out when he had chemo 2 so he ended up shaving it off
Keep you all informed on how session 4 goes
Yorkshire lass

User

Posted 15 Mar 2016 at 21:48

Hi YS,

I have just read your first post , so sorry that you have found yourself here (on the forum) but glad that you have at least reached out and found us. Those early days are so scary and you feel so alone and terrified. I remember them very vividly.

I see you are on the road know with chemo, ( it's a whole new language to learn) 🤓

The one thing that I would pass on is life doesn't end with a PCa diagnosis it just takes a different path.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 16 Mar 2016 at 09:11

This is one of the most insightful pieces of information, It gave us confidence and food for thought. Thank you.

"The one thing that I would pass on is life doesn't end with a PCa diagnosis it just takes a different path"

User

Posted 20 Mar 2016 at 15:33

Update on my hubbys 4th chemo session which he had on Wednesday
Ok on wed & thurs started to feel very weak and drained on the Friday he said it was like someone had inserted a needle and drained all his strength from his body then Saturday and today he's been having the worse pains ever it would hit in one place last for 5to 10 mins then hit in another place he's been taking pain killers which the doctor gave him he says it takes the edge off which makes it a bit bare able also he's been getting breathless but he heard that doxetol can do that to you
So usually by late Monday onwards he starts to feel better again it's just usually the few days after his chemo which is bad for him like we keep saying to each other only another 2 to go he will also be glad to come off the steroids as they have started to bloat him which is also getting him down
Yorkshire lass

User

Posted 01 Apr 2016 at 15:41

Hi everyone
Update on hubby he had his 3 monthly hormone injection today he felt crap when he went in but by the time he came out he was full of the joys of Spring
We had a good talk with the specialist nurse she explained everything to him about all his bloods he's had done the pains he's been experiencing and his latest PSA count
His blood tests shows kidneys and other things they test for is all showing good his PSA is now down to 0.9 so the chemo and hormone treatment are doing there job the pains he having in joints could be due to the steroids as can cause joint pain
So he feels a lot happier after this hospital visit it's put his mind at rest it's made him a bit stronger now for his last 2 chemo sessions the 5th one is next week
He did say I bet I'm not a Gleason 10 now I bet that's come down
I didn't know what to say I know that will not change what he was diagnosed with is what he will always have but his spirits was that high I couldn't answer
Yorkshire lass

User

Posted 01 Apr 2016 at 21:28

Yorkshire lass, sometimes it is the things they don't know that keep them so well - what tricks we partners play when we need to!

Great to hear that he is feeling so upbeat - take care of yourself too x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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