Are we coming to the end?

What can I say organising us ladies love to organise I know it always makes me feel better. If I am having a bad day then I sort out my hand bag and give me a skip well then I am in heaven.

What I am trying to say is if I am organised then I can cope and I think that you are sounding like you are learning how to cope, it is a big ask isn't it . So glad that you are sorting and coping but mind that handbag sorting when you find that half sucked extra strong mint wrapped in soggy tissue ( and you think how the Feck did that get in there)

Keep going you can do it.😉 You are stronger than you think

BFN

Julie X

Glad that things are now in place to make future life a little easier for you both Rosy.

When I get fed up with things I too sort out a cupboard. Yesterday I did the one in the hall where every time John opened it stuff fell out. Never occurred to him to tidy it mind you, just comment on it !
I used it for the first time this morning and I couldn't find what I was looking for, in the place it's been for months, and now I have to re-train my brain to think of the new place I put it.

Every day is a bonus for you, every good day is wonderful, I hope you get to enjoy them all.

Best Wishes
Sandra

We have had a very stable couple of weeks with D feeling better although very sleepy all the time except at night!!

Today he had his monthly abi appointment with the nurse. Psa 59. Up from 23 on 11th Jan. That's a 250% rise in 1 month. Alp up to 405 from 330. Weirdly his Hb is more stable at 9.3. It was 8.7 a month ago and he had 3 units of blood.

He has had another blood test today to double check as these results were from Friday.

The nurse is speaking to the consultant this afternoon and will then phone us with the plan of action. Doesn't look very promising. D is as usual now sleeping on the sofa.

Rosy

Love

Allison

The drop in Hb should be boosted with the transfusion again. I know nothing about Abi so I hope someone can give you benefit of their experience.

It can take a while for these treatments to get going, so frustrating as it is, I guess you have to follow your Oncologist ' s guidance and advice.

The tiredness and fatigue are all part and parcel of this crap disease, of course depression can add to that.

Thinking of you

Best wishes

Xx

Mo

Had a trip to A&E last Sunday as he developed a temperature of 39C. Having taken paracetamol and having a quick shower before we went his temperature dropped to normal shortly after getting there and hasn't gone up again since. He was diagnosed with a urine infection and started on antibiotics. The only other problem they found was that his platelets are now low so we have to get another blood count done today or Monday.

Recently he has had frequent nausea and occasional vomiting despite being on regular anti sickness medication. This got worse this week to the point that he was barely eating anything and was totally disinterested in food. He looks thinner and thinner. A call to the hospice nurse resulted in us doubling the anti sickness pills which has made a big improvement. He was very proud of his empty plate yesterday!

His sleeping pattern is appalling - sleeping most of the day and up most of the night. The sleeping pills don't work anymore but the hospice nurse will talk to the GP about trying something different just to get him back into a better pattern. He went to bed at 6.30am today! And within an hour we had scaffolders setting up across the road just to help him sleep!!

On a positive note he is quite upbeat which is good.

Rosy

It's really difficult when all the normal things that balance our bodily functions go squiffy. Disturbed sleep, lack of appetite nausea, sickness and temperature spikes are all sadly common in later stage cancers. As you will know it's not just the physical changes but sometimes the psychological ones too.

Thank goodness you know when to take action.

It's reassuring to hear that he remains upbeat despite everything.

I hope you are also getting some rest and quality time too.

Best wishes as always

Xx

Mo

Thank you all. Yes I do feel a bit isolated despite weekly coffees with friends and frequent long phone calls. Sometimes I feel like I am just watching and waiting. But yesterday after much soul searching I accepted my future daughter-in-laws invitation to go wedding dress shopping with her in London. My son came and 'dad sat' and I had a really nice day out. I even got a glimpse of the changing of the guard from my taxi!

Julie - the offer of the cuddle blanket was lovely and made me feel better just from the thought. You hang onto it at the moment - you need it too. Your Trevor sounds amazing going up on the roof to fix it despite everything!

Rosy 

The effect of the extra anti sickness tablets has waned now. Not much nausea but absolutely no appetite or desire to eat. His daily intake is a banana with his steroids and one or two Ensure drinks and maybe one small bowl of cereal or a cake. He is even drinking less despite my presenting him with regular tea etc. I pour about half of them down the sink.

He has lost a stone and a half since Xmas and is getting weaker. The last 2 nights he has begun feeling unwell late evening - his 'normal' progression type symptoms. I have had to follow him up the stairs as he is so wobbly and help him undress.

Today he looked at his emails for the first time in weeks. One was a friendly message from his part time job asking how he is and he asked me what he should say. I suggested saying he still wasn't well and wouldn't be able to work. He said quite seriously 'but I'm not ill I'm just feeling weak and feeble'!!

Is one of us in denial? My eczema is spreading wildly!

Rosy