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Really Annoyed !

User
Posted 09 Nov 2015 at 15:23
Well said Zarissa, and if you look at today's "Mail"there are many instances of "Public sector fat cats" and Greed, within the taxpayer funded services. Diesel. x
User
Posted 09 Nov 2015 at 20:46

Ray,

I think if you were to take a poll on here you would find that most people would favour extending their lives and those of a partner even with loss of some quality of life. Were it not so, instead of having treatment which we know will lead to varying side effects, men would decline treatment and continue to enjoy all their pleasures for as long as possible which a few do. As regards encouraging men to have PSA tests and scans and the cost of so doing, it has to be remembered that successful outcomes for cancer patients in the UK are among the worst in Europe. This is partly down to late testing and scans. We have had men on this forum who have had bad experiences due to short comings including those of some doctors/specialists. Money spent on early diagnosis and early treatment, can where appropriate, save more expensive and further life changing treatment later on, so money well spent.

Fiona,

I think overall that at the sharp end the clinical staff do a great job in difficult circumstances. I witnessed this when I was hospitalized earlier this year. That not all patients could be attended to as quickly as they wished was due to insufficient nurses and the fact that some of the equipment was faulty and in short supply so items had to be carried from one bay of the ward to another. I am sure you are right in what you say about areas where money is wasted including external dabbling, well intentioned though it may be. One would have hoped that the large scale procurement would have resulted in lower unit costs being negotiated. To add to this is the high cost of some of the administrators, 'fat cats' as Diesel said. This is not confined to the NHS of course :- http://www.dailymail.co.uk/news/article-3309596/The-shocking-scale-fat-cat-pay-public-sector-exposed-today-major-Daily-Mail-investigation.html

Barry
User
Posted 09 Nov 2015 at 21:46

Barry as regards the poll I suggest that depends on the question such as:

1) would you give up quality of life treatment to extend the life of yourself, partener or family member?

2) would you give up quality of life treatment to extend the life of a person not related to you or even met?

You gave an alternative response which ponders in my mind the question in a secret poll internal and external to this forum just what would people chose to each question?

As regards where this thread started, ED clinic. It doesn't follow that any savings made on such treatment would go towards life extending drugs/ treatment in the PCa world.

Ray

Edited by member 09 Nov 2015 at 22:08  | Reason: Not specified

User
Posted 10 Nov 2015 at 17:20

Hi, 

Finally received my Pump Clinic appointment (if it still exists by then) for February.  If the NHS Board doesn't feel there is a need for this service then I think that waiting over three months for an appointment indicates that this is a problem that a lot of men need help with.

Steve

User
Posted 10 Nov 2015 at 19:01

Ray,

1) Yes

2) Yes to a reasonable degree and of course we do this already through NHS and Social Services who have or are restricting non essential operations and services, (think varicose veins and certain cosmetic enhancement procedures for example) and now have to make further cost savings so pumps for the ED etc may have to be non funded in order to help provide really essential operations and services. There is likely to be no direct correlation between any particular savings and treatment as everything has to come out of one pot but everything costs, large or small.

I am sure that we would all hope that money could be saved on procurement and other area as Fiona mentioned. Also, I believe the vast majority (excluding the beneficiaries), would also wish the pay of some of the top management to be capped well within the present levels to take less out of the pot.

However, in the light of the way things have been and with ever increasing pressures on the NHS, more money is needed to stand still even and it seems unlikely much of that will be forthcoming. As I was told by a dentist, the dental service is now a basic service and I am aware that some have difficulty in affording the NHS dental charges yet alone more elaborate treatments that usually have to be done privately. An insurance broker friend of my daughter said he saw the medical side going the same way. Indeed there is already talk of charging patients each time they see their GP's. My hospital in Barnstaple is the principal one in North Devon and had to rely on the public going out with begging buckets, holding raffles and various other ways in order to raise money for a chemo unit. Now that's what I call disgraceful!!

Edited by member 10 Nov 2015 at 19:06  | Reason: Not specified

Barry
User
Posted 12 Nov 2015 at 08:45

Hi Fiona,

Thank you for posting. I worked in the public sector for over 25 yrs. Reorganisation, futile projects that failed, I could go on.One sad example recently. A patient was transferred from one hospital to another, and was told all the scans and tests would need to be repeated at the ' new hospital' The repeat performance was exactly the same as the previous work.Personal experience, my husband had a scan, and all the information was sent to the wrong place, and we were advised it was lost, and I was made to feel I was out of order being assertive and ensuring it was found. I am trying to persuade our surgery to look using at e-mail as a method of agreed communication. Teresa May has access to all our personal information, so, will my husbands prostate cancer be interesting reading? I suggest not.

The monies wasted in health and the public sector are of a grave concern to me, and to those of us who have seen the misuse of funds.

Especially when our loved ones require support, treatment and compassion.

Ouch, I should stop preaching now maybe.

Leila.

 

 

 

User
Posted 14 Feb 2016 at 03:03
Hi,

I just thought I should update this thread as I started it.

I have finally just received my pump yesterday, after originally asking my GP if I could have one back in July.

It works really well. Just a shame half term has just started as it's difficult to find a place to use it without being disturbed after 5 or 10 minutes by my daughter or her visiting friends.

Steve

User
Posted 14 Feb 2016 at 07:31
Steve,

I've just read your last post (and previous re delay re pump) with interest as I have my first ed clinic in a few weeks.

I had to see my GP re this and she was annoyed that my Onco team had not referred me before.

She thinks I should be offered a pump as a primary requirement and medication secondly.

My RT friend from hospital had his first appointment last week and was offered sidenfil. And go back in 3 months.

He was not offered a pump. I'll see what happens when I go.

I think privacy at home is a must. Already I am 'planning' suitable times in my mind to avoid interruptions !

Anyway good luck and half term will soon be over.

John

User
Posted 14 Feb 2016 at 07:33

Well if you WILL use it in the hallway Steve :-)).
Only joking mate. Keep pumping pumping pumping the poor fella and get him strong again. I've not given up despite no obvious natural recovery. Take care
Chris

If life gives you lemons , then make lemonade

User
Posted 14 Feb 2016 at 09:12

Glad you finally got it Steve and especially glad for you both that it appears it will work for you.

Have you got a lock on the bedroom door? Easily explained to daughter that you need certain times to yourself. Even better is a simple door stop, the rubbery kind that can just be tucked under the edge of the door. IT would stop anyone barging in on you at the wrong time.

Edited to say I realised after I posted that you probably meant privacy for both of you, whereas I was thinking in terms of "practise" !

Half term is only for a week, so you can be "honing" your skills eh?

Edited by member 14 Feb 2016 at 09:14  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 14 Feb 2016 at 12:46

I'm pleased to read that at long last you have a pump to use Steve.

I chose not to wait for the medics to prescribe me one, and purchased one privately online.
Had I not done so, I would probably be still waiting!

Remember!........practice makes perfect.. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

Best wishes
Luther

 
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