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Husband's diagnosis

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User

Posted 10 Mar 2016 at 23:52

Thanks Lyn, He's on Prostrap, next injection due April 29th. He has his brachy mid April,so could it be anticipation kicking in? I'll see if will get a blood test to check testosterone levels.

Thanks

Leila.

Edited by member 11 Mar 2016 at 14:35 | Reason: Not specified

User

Posted 11 Mar 2016 at 17:02

Hi Leila,

I had something similar on Prostrap, I started on it and my PSA initially fell to 0.2, then 3 months later was back up to 3.5, then it fell away again to 0.1 and stayed on <0.1 for the next couple of years.

My local hospital has specialist Urology/Oncology nurses, who are readily available on the end of a phone without the need for appointments etc. They were very supportive and launched a bit of a 'Steward's Enquiry' into what had occured.

The consensus was that I might have been given a 1 month prostrap injection instead of a 3 month shot. The thing is that the boxes the Prostrap comes in look very similar and it's an easy mistake to make. My GP's surgery denied that they had made such a mistake, but then they would say that wouldn't they?

At my GP's surgery I have to collect the Prostrap from the pharmacy and take it with me to the nurses appointment. So subsequently I always made sure it said 3 months on the box.

Of course in a perfect world we shouldn't have to do that, but its worth yor OH keeping his eye out and reading the box, if for nothing else than his own peace of mind.

Dave

User

Posted 11 Mar 2016 at 17:16

Hi Dave, Thanks for your reply. He will defiantly check before the next injection. We have had a tough time with our GP's surgery, as my OH was complaining about poor flow for three years, then prescribed Tamsulosin. He then heard from the GP his PSA 8.5 and told if it continued to rise he's be referred to see a urologist. My OH was not satisfied with this and paid for a private scan and he was diagnosed with stage 3 Gleason 9 PCa

Now awaiting HD Brachy, followed by RT.... starting in April. My OH is quite clear he does not want to take out a complaint, but wants GP's to be better informed and attend up to date training and CPD.

In addition to all of this we have had 9 months of builders. ;-)

Thanks.

Leila

Edited by member 11 Mar 2016 at 18:14 | Reason: Not specified

User

Posted 11 Mar 2016 at 17:48

Now 9 months of builders ! That's a real complaint haha. Seems everyone down our road wants to knock their house down and then build another one in its place. One after another. Actually I'm jealous.
Best wishes
Chris

If life gives you lemons , then make lemonade

User

Posted 11 Mar 2016 at 18:38

Hi Chris,Nine months of builders, with the PCa diagnosis in the middle of it all, life can be such fun. The build should have taken three months, but his workers went AWOL. long story, nothing to do with us....

Thankfully almost finished now, just the odd bits. So now to concentrate on OH's treatment over the summer.Thankfully we are a strong loving couple.

I have read your posts,well done me dear, I have been humbled by reading many a story here yours included.... and I have found great support during my times of fear and weakness. The humour, strength and stories have helped me a great deal.

So now onward with chipping the plaster of me new bathroom walls, and sweeping the brick dust away.

Thanks Leila.

Edited by member 11 Mar 2016 at 18:51 | Reason: Not specified

User

Posted 28 Mar 2016 at 12:28

Happy Easter Monday,
Just a wee bit of advice, David is getting lower back pain & stomach ache, this is increasing . He is on his 2nd round of Prostrap, the pain can be quite debilitating, is this common, or has anyone else had similar effects on their HT. He's due his 3rd injection after his HDbrachytherapy mid April Prostrap injection end of April, then the radiotherapy after that...
Just a small note, has anyone read up on the current research on Aspirin for PCa?...
Will get to see the GP this week , but first hand knowledge is good.

Thanks again.
Lelia.

User

Posted 28 Mar 2016 at 13:20

Has he been checked for a urine / kidney infection Leila?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 28 Mar 2016 at 16:05

Hi Leila, regarding your Asprin query.

I have just started the "add Asprin " trials in January and will be on it for five years, this is to prove/ disprove the theory that Asprin prevents cancer cells re forming/ returning after patients in early stage cancers of which PCa is one and throat, bowel and cervical cancers are others. It will be offered to patients that have just ended their RT treatment.

If you google "add Asprin trials" you can find out more if you wish.

There are already GP's that believe that taking Asprin every day is helpful in preventing cancer from returning and they will prescribe it if you ask and are lucky to have a like minded GP.

Not sure how/ if it will be of benefit in David's case.

Best wishes, Chris/Woody

Life seems different upside down, take another viewpoint

User

Posted 28 Mar 2016 at 16:05

Not yet Lyn, but he will be now, thanks.
Leila.

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