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Artificial Sphincter (AUS). Diary of experiences.

User
Posted 20 Dec 2018 at 21:34
Just a quick update. The AUS is absolutely fine and continuing to work consistently. Unfortunately I have had to discontinue the TRT because my haematocrit reading was too high. I don't want to have to spend another night in A&E (my GP thought I was having a heart attack) so I guess I'll have to put up with the low testosterone.

Psychologically, I have been much better than while I was leaking, and I even managed to drive through Birmingham last week, passing the hospital with barely a shudder.

Tony

TURP then LRP in 2009/2010. Lots of leakage but PSA < 0.1 AMS-800 Artificial Sphincter activated 2015.

User
Posted 31 Dec 2018 at 16:25

Hi All

Just wanted to say a big thank you for all the comments and information. I had my AUS fitted on the 17th December 2018. 2 weeks ago. It quite tender at the moment but I'm able to feel the device. I have very heavy leakage since my operation to remove my prostate just over two years ago. My life has although been very active. Playing golf twice a week, Bike ride once a week for about 12 miles. It's very hilly around Leeds. Not sure if I should mention this but I also take my 4-year-old grandson swimming once a week. ( I know I will leak but with all the chemicals I'm thinking it's ok?) But as others have mentioned it's all been about when I can change pads or find a toilet or private place! Hopefully, it will be much better in a month or so. I will get back to you on my progress!

User
Posted 30 Jan 2019 at 16:51

Hi All

Just a quick note. I have been activated just about a week ago. All went well and I would say I'm 95% dry. This is soooooooooo much better than the place I was before the operation.

 

I'll get back at a later date and give a bit more information. It's not perfect but to me, I'm in a much better place at the moment.

User
Posted 30 Jan 2019 at 19:41
Nice to hear 2 good news follow ups for that piece of kit.

atb to you both

dave

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 30 Jan 2019 at 19:53

Thanjs for update. Useful to know.

A surgeon has offered me this but i want to wait and see if things imorove over time and doing PVE.

 

Ido4

User
Posted 16 Mar 2019 at 15:19

Thank you Tony and co for a great diary of events regarding AUS's. 

Following a visit to the consultant I've been offered an AUS to hopefully solve my leakage problems after the removal of my prostate in January 2018. As my PSA has started to move up after 12 months I've been put on HT and I'm waiting to find out if I need to have radiotherapy or if HT will keep things under control. Based on all the reports on this forum and a favourable result from the consultant I hope to join the AUS club later this year.   

Edited by member 16 Mar 2019 at 18:03  | Reason: Not specified

User
Posted 16 Mar 2019 at 17:25
Still working.....
Tony

TURP then LRP in 2009/2010. Lots of leakage but PSA < 0.1 AMS-800 Artificial Sphincter activated 2015.

User
Posted 15 May 2019 at 12:11

Had AMS sphincter fitted in February, very bruised, no pain but lots of discomfort. Switched on in March complete success! great relief; back to kayaking at a good pace four hours once a week, portaging 25kg kayak with no leakages; me, not the boat! Very hesitant about trying my first love of cycling. I spoke to my consultant who confirmed that there would be discomfort but cycling would not damage the AMS. After some trial and error I would recommend that anybody coming back to the bike should: Fit a prostate friendly saddle, drop the nose of the saddle a couple of mm this will take the weight off the tender area, it will however put more strain on shoulders, arms and neck so I recommend raising the handlebars a couple of  mm. I have also fitted a gel saddle cover (£12) I wear padded cycling shorts and a small pad, just in case. My first ride was 10 miles+ on roads I know well, on the hilly sections where I would normally get out of the saddle I now drop a gear, stay in the saddle if comfortable. The only time I got out of the saddle to have a stretch I sat down without thinking and activated the device! luckily there was not a lot to lose but a lesson learnt. I'm back on the bike and although there will be compromises the benefits far outweigh the negatives. I've shaved off my beard, mudguards off this afternoon I'm nearly a racer again! See you up the road.... Old Roly.

User
Posted 19 Apr 2020 at 08:59
I've noticed a bit of an outbreak of posts about incontinence recently. I hope the content of this thread might be of use.

Nearly five years on, the AUS continues to work well with minimal leakage.

Tony

TURP then LRP in 2009/2010. Lots of leakage but PSA < 0.1 AMS-800 Artificial Sphincter activated 2015.

 
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