That was not in the plan.

User

Posted 10 Aug 2017 at 21:33

11 weeks post salvage RT, PSA down from 0.27 to 0.08.

Thanks Chris

User

Posted 10 Aug 2017 at 21:44

Yay Chris. Hopefully well worth it I'm sure. You're a trooper mate.

If life gives you lemons , then make lemonade

User

Posted 10 Aug 2017 at 23:53

That is so good to see - congratulations x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 11 Aug 2017 at 04:54

Great news, Chris

User

Posted 11 Aug 2017 at 05:35

Great news Chris

User

Posted 11 Aug 2017 at 05:44

Excellent news Chris

User

Posted 11 Aug 2017 at 06:07

Well done Chris.

Very pleased for you.

We can't control the winds - but we can adjust our sails

User

Posted 11 Aug 2017 at 07:50

Top news Chris! Chuffed to rocks for you!

User

Posted 11 Aug 2017 at 13:50

Great news Chris. It's a great feeling isn't it.

All the best,

Kevan

User

Posted 11 Aug 2017 at 15:14

Fabulous news Chris
Keep on rocking

Paul

User

Posted 11 Aug 2017 at 15:21

Cool stuff Chris

User

Posted 11 Aug 2017 at 17:10

Woo hoo! Fab news indeed...

User

Posted 11 Aug 2017 at 17:26

Sound result!

User

Posted 11 Aug 2017 at 22:30

Fandabidosie .

Brilliant result .

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 12 Aug 2017 at 01:42

That's wonderful news, Chris.

Really pleased for you.

Steve

User

Posted 12 Aug 2017 at 19:42

Oh wow, so delighted to see this news.

User

Posted 28 Nov 2017 at 18:30

Well the good news is the PSA is down from 0.08 at three months post SRT to 0.04 at six months post SRT.

The water works are still a nightmare and we are still looking at either long term SPC or bladder removal and a urostomy bag. My consultant is happy to refer me to a consultant outside his circle of colleges to get a fresh view of the problem.

I do not recall seeing any other guys on here who have lost their bladder as a result of RARP or RT.

Thanks Chris

User

Posted 28 Nov 2017 at 19:24

You have had a real rough ride of it Chris. When I saw my Uro after the op , he said in hindsight he wished he’d removed the bladder. Having said that they are not attributing my racing psa to that area ! On a good note it seems you did just have rogue cells in the prostate bed and the RT has hopefully fixed it. I was surprised though with all your strIcture probs that they offered RT.
Anyway best wishes mate

If life gives you lemons , then make lemonade

User

Posted 29 Nov 2017 at 09:44

Thanks CJ.

It did take a second opinion to get the RT without having the bladder removed, but the trade off was having the SPC just in case the urethra closed up. The urethra has more or less survived but now they are saying the bladder has been damaged by the RT. Now the bladder capacity is quite low around 200ml uretheral reconstruction and AUS look to be off the table.

I am pursuing alternative options including alternative therapies.

Thanks Chris

User

Posted 07 Mar 2018 at 21:08

Well a bit so a tish day today PSA up from 0.04 to 0.06 now 9 months post SRT. I also went to see a prof in Manchester about the shrinkage of the bladder, he is not optimistic of getting the capacity back and has suggested bladder removal. My already defective kidneys could be made worse by extra pressure from the bladder. I was quite relaxed about such a small PSA rise until prof commented that there was possibly something lurking around.

Then to top it off the 4 carriage train was substituted by a 2 carriage train and it was packed.

Thanks Chris

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