Worried and scared

Gary the bone scan is a great result . Very happy for you that the spread is no worse . I find it interesting how all Onco's and Uro's etc have different ideas and methods . I guess they tailor the treatment to the individual and their age and lifestyle etc. I too have lymph spread and G9 and PSA now 2.4 following surgery . I asked about Chemo and he said no . He also said there weren't any trials going on . Just plain old HT / RT . But even then different Onco's use different drugs for different periods , and different dosages of RT etc etc . Its an art form obviously .
Soooo jealous you going away . Enjoy
Chris

Just a quick update

I have started my chemo last Tuesday and so far have felt fine .I have gone back to work today ,im self employed so can work as much or as little as i need too.

I  have only been diagnosed since early September but  my life has changed , thanks to the hormone injection anything below the belt has gone to sleep....my only saving grace is its stopping the cancer growing . 

been having a lot of thoughts of "how long have i got"  and trying to not look at Dr google ...

I did a 5 km run on Sunday with my girlfriend and felt great ...we didnt  do any training ,apart from walking the dogs everyday  but felt confident we could do it without to much of a problem . and there i was running ,sweating and  on Day 5 of chemo....

anyway just wanted to thank all of you who reponding to my worried and scared 

gary

Hi Steven ,

Thanks for your reply, Looks like we are in the same boat .....and glad your PSA has come down ,a step in the right direction ...

Staying positive is easier said than done when Cancer comes and gives you a big smack in the face , but you either sink or swim and im not going without a fight ....

I have a blood test next monday (post chemo ) and my 2nd session on the following tuesday 17th ....

good luck aswell...

I completed chemo a month ago with no real side effects 👍

I them had a scan 2 weeks ago and results yesterday where the largest lymph node is now 1.2 so have halved in side and my PSA is 0.12

All in all my oncologist was really pleased and the chemo and hormones are working

Been feeling a little tired around 4/5pm and oncologist said I shouldn't have just stopped taken steroids but dropped the doses

I did asked the nurses at the last and final chemo but they said I was fine to stop , anyway it doesn't matter as feeling ok and extra ok with my results

I'

Guess this is a journey , a fight ! Feel like I won the first round with the big C

I hope all of you guys are winning , especially blade runner and Chris j who I have followed and really taken note of there knowledge . Everyone on this site has been amazing . I look through conversations and an collecting knowledge as I go

Thanks you everyone !

Gary I'm so pleased for you . The treatment seems to have gone well for you , and in my mind what is most important is that the patient himself feels as happy and comfortable as they can , and to be able to steer their treatment a bit to provide a future that they can cope with . You seem to have this nailed at the moment . Hats off to you doing the Chemo . All the best and keep posting mate
Chris

Good news. Very pleased for you Gary

Hi ,

Havnt been here for a while ....I needed a few months of trying not to keep reminding myself of the c word ....I have been felling really well and my body hair has come back....starting to look normal again. Still see my oncologist once s month to check psa .

Had a call from hospital to say I could be put forward for radiotherapy. 35 sessions . Appointment was last monday. To say it was the worse consultation I've ever had was an understament. Firstly the radiologist didn't realise I was waiting and thought I was a no show .....so he was all ready to go home when my oncologist nurse saw me sitting in the corridor and him opening his office door to go ....I heard """ well you will have to be quick ,I can see you "

Great start ..... I explained I've been sitting with my girlfriend ,mother and sister for 25 mins and have always waited for a doctor to call you in ,rather than knock on random doors ....anyway he seems amazed why I was there and after he looked at my scans for all of 30 seconds and asked a few questions ,like did I work or have children ...explained that I could have 35 sessions , seven weeks ,5 days a week

I guessed he wasn't to impressed with the trial as in his words would have to " splash" a lot of radiation and could cause a lot of problems for my bowel and bladder .....also I would lose 20% of my bone marrow ...... I've come to term that I will not be cured and maybe he was trying to weigh up treatment effects with quality of life ...

Really could do with some opinions ,

I'm going to see my oncologist as she has been so positive but he made me feel totally crap .

Gary

What a terrible experience Gary when it is not your fault. When you see the oncologist he/she will probably have a different overview and be more compassionate, I would explain to them what a bad appointment that was and if nothing is said or done about it, follow it up with a complaint to the PALS unit at your hospital ( that is: Patient Liason Service) they will be unbiased and get something done for you even if at the very least you do not see that radiologist again.

The sessions of RT will seem to take for ever but before you know it they will be finished.

Best of luck with your treatment.

Chris/Woody

Life seems different upside down, take another viewpoint

Thank you ,. I originally was going to have RT until a scan came back with one lymph node that was outside the area showing signs of being enlarge and oncologist was unsure what it might do untreated ... They have all shrunk down to under 1.1 . I have 3 nodes effected ....

Oncologist never mentioned losing bone marrow and conversation went as far as toilet trouble .....

Having completed the chemo and feeling good and only a few side effects I felt ready to have the RT by now not so sure .