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User
Posted 05 Nov 2015 at 21:22

Well done Duncan
I wish you as much sleep as you can get. It really helps. I never had a stand even in hospital. Just dumped the bag in a cardboard bed-pan they did.
All the best for a speedy recovery
Chris

If life gives you lemons , then make lemonade

User
Posted 05 Nov 2015 at 22:43

 

D

Number one, no straining to pass that first motion.

I bought the OH some rubber gloves so she did not get urine on her hands when connecting and disconnecting my night bag. I also use a thigh/catheter strap round my ankle and connect the night bag tube to it, then if you are a restless sleeper less chance of some thing coming undone.

Have you got a spare thigh strap,if so shower with the strap on tuck the tap under the strap change to a dry strap when you get out the shower let the wet one dry ready for next day.

By passing can be a bit uncomfortable i.e. urine leaking between the catheter and urethra, normally when sat on the loo,  use a few sheets of loo roll under the end of the penis to pick up any leakage.

Take it easy but keep mobile, all the best.

Thanks Chris 

User
Posted 05 Nov 2015 at 22:51

Originally Posted by: Online Community Member

I bought the OH some rubber gloves so she did not get urine on her hands when connecting and disconnecting my night bag. 

 

Most women appreciate flowers or chocolates 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 05 Nov 2015 at 23:28
Lyn you are being very impish today!!

Duncan

Great news and I wish you all the best for a speedy recovery.

Xx

Mo

User
Posted 06 Nov 2015 at 06:47

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member

I bought the OH some rubber gloves so she did not get urine on her hands when connecting and disconnecting my night bag. 

 Most women appreciate flowers or chocolates 

Buy her Marigolds.  Flowers/Gloves - combined.  Sorted!

dave

 

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 06 Nov 2015 at 08:35

Good luck Duncan
Wishing you a speedy recovery

User
Posted 06 Nov 2015 at 13:44

Wishing you well. I found those couple ow weeks with the catheter in situ were not too pleasant. It did tend to have an impact on my mobility. Take it easy and listen to you body. I thought I was reasonably fit but it took it out of me in the early days. Hope all goes well. As stated earlies opening your bowels without straining is a challenge. I needed a visit from the doctor and a prescription for movicol. I found sitting on the toilet with my legs raised up in front of me on a small stool helped reduce overflow.

Take care.

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 13 Nov 2015 at 10:29

Morning all

Quick update now I've been home a week.....sleeping is still an issue, just can't get comfortable (sleeping in one position isn't the issue as I'm used to that from my sailing days), lots of wind which doesn't help (2 cups daily of peppermint tea), movements are "interesting" resulting in quite a bit of catheter bypass, daytime telly is appalling, taking things very easy with gentle walks when the weather allows...

The district nurse was out on Tuesday, took a sample to make sure there's no infections (all clear) and I'll be doing another sample on Monday as that's her biggest concern....

Roll on the 19th when I get the catheter out fingers crossed, awaiting the date for my appointment with the consultant for the results....

Onwards....

User
Posted 13 Nov 2015 at 10:41

Hi Duncan
You're doing really well . I was "lucky" in that I was in hospital the whole time the catheter was in , so I didn't really have to manage like you with a normal life . It gets so much better . Best wishes for 19th
Chris

If life gives you lemons , then make lemonade

User
Posted 13 Nov 2015 at 10:42
Hi Duncan

Good to hear that you are on your feet and going for walks, albeit with our weather that won't be very far.

Good luck with results etc.

Sandy.

User
Posted 13 Nov 2015 at 15:05
Duncan

I think of lot of people find it hard to get comfy with a catheter fitted. also you are doing a lot less activity than pre op (well you certainly should be) so you are probably not as tired as usual. I never watch daytime TV I opt for the radio instead if I am at home.

Sounds like your district nurse is on the ball and checking up on you. Hopefully as soon as the catheter is out you will start to feel like you are really on the road to recovery. Dont expect too much day one, make sure you have a reasonable supply of pads (mixed sizes) change them reasonably regularly and keep everything really clean.

The wind is residual from being inflated for the operation it can take a week or so to dispel it all.

As for pooping however desperate you feel, do not strain too hard, a tip to mmake things easier is to put a small foot stool or even a small box just in front of the loo and put your feet up on that when you want to try and go. It takes a lot of the pressure of your back passage and makes it much easier to go. Even post removal of the catheter you will probaby find any action in that area will cause an unstoppable escape of urine as well. The sphincter muscle is what controls both activities and it takes a while for it to learn how to do one without the other again.

all the very best

xx

Mo

User
Posted 13 Nov 2015 at 15:35
Hi Duncan

Having been where you are now I know exactly how you are feeling. I had the catheter in for 10 days post surgery and it certainly is a challenge and so is doing a number 2! However, this time next week it should be out.

I can give you one bit of advice - when you go for the trial without catheter make sure you wear tighter fitting underwear rather than boxers as they will hold a pad in better. I didn't think and wore loose boxers. The pad got heavy quickly and kept falling down my trouser leg. Embarrassing at the time in front of others in the waiting room but I laugh about it now!

Wishing you all the best.

User
Posted 19 Nov 2015 at 15:22

Update 19/11 - the good news is that the catheter is out (quite a un-nerving experience), the bad news (as expected) is that I'm now in free-flow until I get to grips with things again....

The other bad new (or good news in a reverse logic sort of way) is that my follow-up with the surgeon is likely to be in January, not mid December as previously advised....time to start phoning secretaries me thinks...

Right, away to start my PFEs...

User
Posted 19 Nov 2015 at 15:31

Best of luck with the recovery Duncan . I hope the PFE's do the trick. I think it seems to be luck of the draw whether you are dry or not when the catheter comes out . I saw my surgeon yesterday and he's been doing a new thing during surgery and said he's had an amazing summer for continence success.
Maybe no news is good news before Christmas. As you've probably noticed this journey seems to just go on and on and on .......
Best wishes
Chris

If life gives you lemons , then make lemonade

User
Posted 19 Nov 2015 at 18:37

Hi Duncan

Good news with the catheter removal, you will just need to carry out your PFEs and hope it recovers quickly.

Keep posting as I would be interested with your progress as I am about to start the same journey with op now set for 7th December.

Sandy  

User
Posted 26 Nov 2015 at 16:59

Update 26/11 - one week since the catheter was removed, PFEs continuing, started at 3-4 pads a day, was down to 2, but today is back up to 3, fairly dry overnight but involves a couple of trips

Started on Cialis on Monday (20mg twice weekly), had some side effects yesterday and today (head fog and aching muscles) but coping with pain killers....really tired today so that won't be helping with the constant leaking...

The district nurse was out on Monday and she's ordered some different male shaped pads rather than the generic surf boards I'm currently using...

D

User
Posted 26 Nov 2015 at 17:24

Originally Posted by: Online Community Member

Update 26/11 - one week since the catheter was removed, PFEs continuing, started at 3-4 pads a day, was down to 2, but today is back up to 3, fairly dry overnight but involves a couple of trips

Started on Cialis on Monday (20mg twice weekly), had some side effects yesterday and today (head fog and aching muscles) but coping with pain killers....really tired today so that won't be helping with the constant leaking...

The district nurse was out on Monday and she's ordered some different male shaped pads rather than the generic surf boards I'm currently using...

D



Sounds to me like you are doing pretty good Duncan!.... you will get fluctuations on your pad usage depending on a number of factors....but to be on just 2 or 3 pads a day  at just 1 week post catheter removal  I would say the indications are that you will will achieve full continence sooner rather than later hopefully.

Cialis gave me headaches and 'flu like' symptoms also...but I found that after regular use the symptoms subsided for me.....

Blimey! You are lucky to get help with pads... I have to buy my own still.........I've  had bugger all help,  and certainly no visit from a nurse!..... not even any communication with or from my GP since my op 17 months ago....... 

Best wishes for a speedy recovery
Luther


 

User
Posted 27 Nov 2015 at 12:18

I saw a continence nurse who told me beer, tea and fruit juice would all irritate my bladder so I cut out the fruit juice.

THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 27 Nov 2015 at 12:34
Great choice Paul.

Sandy

User
Posted 03 Dec 2015 at 15:04

Update 03/12 - 2 weeks from catheter removal and 4 weeks since the operation

Well, the pads arrived yesterday (just a trial amount but I think I'll ask for some more as they're very comfortable compared with the generic surfboards)...I'm also signed up to the Continence Care Service so they'll be able to supply pads going forward once the trial has finished (sorry Luther)....I fluctuate between 2 & 3 pads daily (do you count the overnight pad as this is what I have been doing so that's 2-3 pads over a 24hr period?), PFEs continuing, fairly dry overnight but 2-3 visits, quite dry in the morning but def leak more in the afternoon and evening as I get more tired.

Slowly getting to grips with the side effects from the Cialis (headaches are worse than the muscle pain now), but I'm pleased to report that things are moving in the right direction even if not sufficient for proper "fun"....but it def brought a smile to our faces....

Still finding not sleeping too well, I'll try a glass or two of wine tomorrow evening to see if that helps ...here's to another week

 
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