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Erecting the Erection - Medication

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User

Posted 08 Jan 2016 at 16:01

Steve

Trying to send you pm but your box is full..?

User

Posted 09 Jan 2016 at 15:29

Hiya

i have a few questions with peoples experience with Viagra.

I am 7 Months post op, only just managed to see the ED clinic.

I have been told to take 50mg 3 times a week, although the consultant said if nothing has happened now this long after the op nothing will,( very dismissive) i insisted!!!!

Any views on this going on past personal experience anyone?

Do you have to take it for weeks months? Has anyone upped the dosage and had success?

Im asking on here as i find with the clinics your just another number, feel a bit let down post op to be honest

Johny

User

Posted 09 Jan 2016 at 16:07

One thing I would say to anyone on here , and I have before , is that if you feel your treatment of ED is lousy then you need to take control . If you are fortunate enough to have a spare £150 in your pocket then see your surgeon privately and stamp your feet very loudly . A guy your age should definitely be getting thorough help with this .
I'm 7 months nearly mate . At 8 weeks my surgeon said the tablets wouldn't help ( any of them ) despite double nerve sparing. I've tried them all and they make me very uncomfortable symptom wise with ZERO results . The pump is awesome . Its called SOMAerect . Again if the NHS is non-complying then bl***dy buy one if you can and get pumping . I can give you the website . I think its about £160 . I was allowed to start on Injections straight away and have had average success and we are still working on the dose. I'm so lucky in my area that I am getting awesome help. I even have Pump Nurse , ED nurse , and Prostate nurse mobile numbers and they always reply to texts .
Having said all that mate , I'm not getting anything natural happening at all either but I'm damn well not giving up , even though I'm on HT now and have RT ahead.
Johny you have to drive forward if you want recovery . If you sit back then they will happily let you . I'm really polite to everyone I speak to , but I'm needling them and getting results .
All the best
Chris

If life gives you lemons , then make lemonade

User

Posted 09 Jan 2016 at 17:40

Johny

Just to add something to my previous post, not sure how Viagra or sildeafil work with a fully nerved complete male but in our situation you may need some serious stimulation to get it working. It can also take several hours to take effect, I would sometimes be 12 hours before it had the feeling of an effect, then I could get a reasonable result.

I think CB gives a good description of the amount of work required.

CJ,love your reply.

Thanks Chris

User

Posted 19 Jan 2016 at 16:36

HI All,

Quick update on my experience with Viagra,

Been taking 50mg 3 times a week for the past couple of weeks and as of today we had lift off, of sorts.

Something is certainly going on, at one point with a lot of encouragement id say 50-60% of what it should be.

Not bad considering my consultant had all but written me off only a matter of weeks ago.

Cant say its risen from the dead just yet but with time who knows

Johny

User

Posted 19 Jan 2016 at 17:20

Really chuffed mate. Just persevere. Like the lottery , you have to be in it to win it. I've decided to not use tablets at all till after HT/RT. But Gud talk with home GP the other day and he said he will happily put me on 5mg daily Cialis when I want.
So I continue with the pump daily and he looking good ( my perspective ) , and Caverject No6 used the other day. Whilst clearly " not himself " he was man enough !! That'll do me. May all your attempts be fruitful mate
Chris

If life gives you lemons , then make lemonade

User

Posted 19 Jan 2016 at 18:45

Chris, thanks for that

Hopefully i should be joining the pumping crew in the next couple of weeks,

Got an appt on the 1st, finally get to stick it in something lol

Johny

User

Posted 20 Jan 2016 at 19:44

Hi Guys
Just wondering what and when I should ask for some kind of aid/help with ED post surgery. I know that the surgery was non nerve saving and everything in that area was removed.
After getting the catheter removed I went for a shower and decided to have a wee play with the old fella but it was a sad sight with no response.
Anyway just wondering if I should be asking for something now as I have been reading a few posts here stating that some guys have been prescribed some kind of aid straight after their surgery.
I am now 6 weeks post and I have my consultation on the 16th Feb and was going to wait until then but would like to try something just now, I know that nerves have not been spared but still willing to try anything that might waking up the wee fella again.
Cheers

User

Posted 20 Jan 2016 at 20:06

Hi Sanders
Whilst I fully empathise with you , leave the poor fella alone until the next consultation. That is the ideal time to express your desire to resume as full a sex-life as you can manage , as soon as possible. Make it quite clear you want serious help with this. Tablets are unlikely to work for you , but when it is safe regular use of a pump will keep your penis and its workings healthy. Alprostadil will be your drug probably which is Muse pellets or Vitaros cream placed inside the urethra , or the injectable version Caverject which is not as scary as it sounds mate. In the meantime keep him warm and massage him ( not in public preferably ) to keep as much blood in the area as possible. I remember Mr Wriggly looking very forlorn and feeling ice cold for ages. He looks so much better 7 months on. The feelings are there but the blinds are shut at the moment.
All the best. I know how you are feeling. It's awful. Take care
Chris

If life gives you lemons , then make lemonade

User

Posted 20 Jan 2016 at 20:11

Thanks Chris

That put a smile on my face.

Cheers mate for the advice once again.

Sandy

User

Posted 20 Jan 2016 at 20:12

Hi Sanders,

I have no experience of non nerve sparing surgery, so can not advise whether you will get movement or development in due course?

But I understand and believe that it is important to maintain blood flow to the area somehow. That can be achieved in a number of ways, all involving manipulation of some sort. The most effective way to get blood going to the extremity of the region is to twirl it, I kid you not. Simple physics, and centrifugal force will move blood to the outside of the circle that you twirl. Imagine a dancers nipple tassels, not sure if "nipple tassles" will pass the censorship bot, so just to be sure tassles that you see on the end of an exotic (strippers) dancers breasts pointy bits, that should get through.

Grasp the base of your penis and twirl. Clockwise or anti clockwise, or should that be cockwise? What a dreadful pun. You should find that blood will flow to the end and it will colour up and become fuller.

I hear from a friend that this technique worked well for me! http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif Needs to be done regularly as you can. I was doing this pretty much as soon as my catheter was removed. Sorry "MY FRIEND" was doing this pretty much as soon as my catheter was removed. http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif

atb

dave

Edited by member 20 Jan 2016 at 22:20 | Reason: Not specified

Do all you can to help yourself, then make the best of your time. :-)

User

Posted 20 Jan 2016 at 20:39

Is a simple side-to-side ok Dave? I don't know what you're handling but I'm struggling with a swirl :-))

If life gives you lemons , then make lemonade

User

Posted 20 Jan 2016 at 20:44

Cheers Dave

Asked the better half to see if she was up for it and she went into a bout of laughter when she read your post.

But yeah will give it a go.

Sandy

User

Posted 20 Jan 2016 at 20:54

I know what you mean Chris, I'm strugging to put the tassle on.

Sandy

User

Posted 20 Jan 2016 at 22:28

Originally Posted by: Online Community Member

Cheers Dave
Asked the better half to see if she was up for it and she went into a bout of laughter when she read your post.
But yeah will give it a go.
Sandy

Chris - depending on your particular circumstances, it may be that side to side oscillation is sufficient and adequate to stimulate blood to flow to the nether ends?

Sanders - the more weight you get at the end of your parts, the better. Weighted tassles? OR, your OH holding on and swinging from the end? Could she/he dress up Tarzan style and do the "WHOOOOAARRRR AARROOAAHH OOOHHHARRR" a bit like Tarzan did when swinging through the jungle on the always conveniently placed vines?

JAT http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-surprised.gif

dave

Do all you can to help yourself, then make the best of your time. :-)

User

Posted 20 Jan 2016 at 22:35

Sanders

Chris J and Dave have given very good advice. As regards the tablets there is no harm in asking, I was "supposedly" non nerve sparring, at six weeks I got sildeafil from my ED guy the surgeon said it was a waste of time but at around 11 months post op and numerous stirrings the surgeon put me on daily sildeafil saying some nerves may have survived. At first the results were encouraging but the effects seem to be diminishing.

I use muse with good results.

All the best for your recovery.

Thanks Chris

User

Posted 20 Jan 2016 at 22:36

Separate out the issue of penile health and erections from the issue of learning to orgasm again. At 6 weeks post-op with no nerves spared, the best you can do is follow the advice above re encouraging blood flow into the penis - not particularly for the blood but for the oxygen it carries. But that doesn't mean you can't have any fun. John had his first orgasm on the day the catheter was removed - oral sex does not need an erect penis to produce a climax and hand masturbation is perfectly possible if you use loads of lube.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 21 Jan 2016 at 13:44

Originally Posted by: Online Community Member

Hi Sanders,

Simple physics, and centrifugal force will move blood to the outside of the circle that you twirl. Imagine a dancers nipple tassels, not sure if "nipple tassles" will pass the censorship bot, so just to be sure tassles that you see on the end of an exotic (strippers) dancers breasts pointy bits, that should get through.

I hear from a friend that this technique worked well for me![img=http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif]

Needs to be done regularly as you can. I was doing this pretty much as soon as my catheter was removed. Sorry "MY FRIEND" was doing this pretty much as soon as my catheter was removed. [img=http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif]

atb

dave

Dave- this made my day. Only on the prostate cancer website forum would you find someone worried about whether 'nipple tassels' might pass censorship, but be completely unconcerned about 'twirling your penis cockwise'....

Edited by member 21 Jan 2016 at 13:46 | Reason: Not specified

User

Posted 21 Jan 2016 at 15:12

;-)

Did not occur to me Louise.

dave

Do all you can to help yourself, then make the best of your time. :-)

User

Posted 31 Jan 2016 at 14:08

Twerling update.,

As mentioned above i thought id give it a go but be careful, if you are still suffering incontinence you may have to repaint the bathroom ceiling!!!!!!

It does work with the blood rush to a degree combined with a Viagra im getting better results for sure, but i am considering apply for a pilot licence as i swear my feet left the ground at some point.

Thanks for that,

Johny

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