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External Beam Therapy

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User
Posted 01 Oct 2015 at 15:03

Thanks Maureen

I sat in the hospital car park today and ticked my second visit off only another 35 to go. It would be OK if I didn't have the 100 mile commute each day. Then I look around the waiting room realising I'm perhaps the lucky one.

Colin

User
Posted 01 Oct 2015 at 17:12
The first couple of weeks go slowly, but after you get half way it will fly by.

All the best.

Alison

User
Posted 01 Oct 2015 at 18:40

your'e right Alison, as each day goes a little piece os PC is exterminated.

Colin

User
Posted 29 Oct 2015 at 19:19

Been a while since I've been here, so just a quick update.

I've now completed 22 radiotherapy sessions. Travelling the 100 miles return journey a day, plus the radiotherapy treatment is very tiring. I am struggling with tiredness in the afternoons. Peeing has its problems with reduced flow and starting and stopping, and getting up 4 times in the night. With the daily enemas you don't go naturally anymore, (only at weekends).

All in all, it's not too bad. The care of the staff are excellent. Always checking that your ok.

Only 15 more sessions to go.

User
Posted 29 Oct 2015 at 19:28

Hi Colin,

You're doing really well.  You deserve a good rest once you finish the last session.

Keep going, it will soon be over.

Good Luck.

Steve

User
Posted 29 Oct 2015 at 19:37

Thanks Steve

I'm looking forward to getting up at my normal time and not 5am. Ahhh bliss.

Colin

User
Posted 29 Oct 2015 at 19:37

I have such respect for you friend and best wishes. What a big journey each day heh ! I have 33 sessions at end Jan but at least a 20 min journey each way so I'm lucky maybe. I hope your symptoms remain manageable


ChrisEdited by member 29 Oct 2015 at 19:47  | Reason: Not specified

If life gives you lemons , then make lemonade

User
Posted 29 Oct 2015 at 19:54

Thanks Chris

When your in the waiting rooms you meet some very interesting people, and makes you realise that you're not the only one.

Good luck with yours in January

Colin

User
Posted 29 Oct 2015 at 20:10

I guess I'll have to stop wearing jeans , trainers, t-shirts , hoodies etc , and act / look a little older than 48 !

If life gives you lemons , then make lemonade

User
Posted 29 Oct 2015 at 20:26

You wear what you feel comfortable in, as long as you can remove your trainers and jeans quickly that's fine. As for age, if anyone asks tell them you're 63.

User
Posted 29 Oct 2015 at 20:31

I'm beginning to look 63 :-((

If life gives you lemons , then make lemonade

User
Posted 29 Oct 2015 at 20:34

You're only as old as you feel, with lack of sleep I feel 83.

User
Posted 30 Oct 2015 at 01:10

A few weeks after RT had ended my 'frequency' returned to post RT levels - fewer getting up times at night = less feeling tired.

Barry
User
Posted 30 Oct 2015 at 11:14

Hi Barry

Can't wait.

Colin

User
Posted 30 Oct 2015 at 19:44

Hi,my husband and I saw surgeon today, we saw urologist 2 weeks ago for biopsy result,then after talking with him felt da vinci surgery was best choice. Today felt we back to square one,he really made it sound like a bad choice for us,main theme seemed to be that at 71 years side effects of incontinence and ed were going to take long while to get over,up to 3 years at worst. We came out feeling as if our minds were spinning,he delivered the information so quickly. Now waiting to see oncologist about radiotherapy and HTTPS. Tired out!!! Any thoughts?

User
Posted 31 Oct 2015 at 08:04

Hi sofijoan

The treatment for PC is a difficult decision for anyone. My decision for RT took a long time to come to terms with, I really didn't want the operation.

Have you ordered the toolkit from this site. You will find a lot of information on all treatment options.

If you start a new thread you will get more replies and help.

Colin

Edited by member 31 Oct 2015 at 08:05  | Reason: Not specified

User
Posted 11 Jan 2016 at 19:19

Well it's been a long time since I posted here, so I thought I would give a quick update.

Finished treatment on the 19th November. What a relief. Looked forward to a couple of extra hours in bed in the mornings. I had to cope with a few after effects ie:- radiation Proctitis, tiredness and a very sore rear probably due to 37 emema's. These problems are still ongoing.

Anyway, I had my follow up appointment today and good news. My PSA has gone down to 2.6 and the Oncologist is pleased with the readings and wants to see me again in 6 months.

I'm happy with my decision to go with Radiotherapy.

User
Posted 11 Jan 2016 at 19:29

Down is a good direction !!

Glad you are happy with your choice and that it appears to be working or you.

37 enemas Yikes!!! Have you been prescribed any cream to help with the soreness ?

All the best
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 11 Jan 2016 at 19:39

Hello Sandra

I was prescribed some cream by my local GP. I stopped using it after 10 days as instructed. Unfortunately the problem is returning. The Onco said I must have a very sensitive skin and to stop using the cream and see how it goes ???

Colin

User
Posted 11 Jan 2016 at 19:58

Hi Colin,

Good the PSA is falling and it should continue to fall over the next 12 months as the effects of the RT continue to work.  My PSA was 1.6 following radiotherapy in November 2014 and has now gone down to 0.027 when last tested (before Christmas).

Hopefully, your side effects will reduce as time goes by.

Steve

 
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