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Complementary Treatments

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User
Posted 12 Jun 2015 at 18:47

Looks to me like people making money from the gullible

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 12 Jun 2015 at 18:50

Just to be clear, chemo doesn't 'work' for Prostate cancer, the way it does for some others such as leukaemia and lymphoma. In PCa it is used as a slowing tool to damage the cells and disturb their replication

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 13 Jun 2015 at 09:59

Forever a cynic but I do wonder if the oncologist is a vegan or at the very least a vegetarian.....

comment with no offence intended and do believe in people making choices for themselves and doing what they feel is right for them

Bri

User
Posted 13 Jun 2015 at 12:14

Bri, I think XK8 asked the onco for her opinion rather than her volunteering it. He reports above that she said she had no experience of apricot kernels or cannabis.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 13 Jun 2015 at 16:14

Lyn, I'm certainly not gullible http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif.  I'm a professional engineer, so I carefully evaluate all the options and am prepared to take calculated risks to achieve progress.  I have spent most of my working life in research and development.

I think that part of the problem with complementary therapies is that not enough scientific research is carried out.  Setting up a research project involves a lot of cost, time and people.  The drug companies will not fund research unless they can see a potential profit which probably means a patent to protect their work.  The NHS mind-set is on conventional treatment, although I have now just been offered both a massage and a mindfulness course.   The cancer charities seem unwilling to fund this research either, which is a pity, we need to innovate.

For instance, there has been recent comment on taking an aspirin a day to potentially lower risk of cancer spreading, or metastasizing.  Aspirin is a widely available, cheap drug that is probably out of patent time.  There is little commercial profit in carrying out research, so does that mean we should ignore this possible benefit?  I will certainly discuss this with my GP asap.

I'm not an evangelist!  This is for my benefit as I would really like to conquer my life threatening disease.  If this helps anyone else that's really good too.  I would simply like fellow sufferers' comments on their experience with complementary treatments please.

Steve

(XK8 is my Jaguar http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif)

 

User
Posted 13 Jun 2015 at 17:29

I didn't mean you - I meant the people who carried on having that treatment after it was banned in the US

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 13 Jun 2015 at 17:32

I prefer to use people's code names. Some existing members seem to have trouble remembering that everything we post is now googleable (our old forum was secure and could only be viewed by members) so it seems sensible to me to provide as few identifying snippets as possible :-(

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 28 Jun 2015 at 18:33

Hi Peter

I seem to be in a similar position to where you were when first diagnosed. I have stage T3b, infiltration to right hand seminal vesicle, large bilateral tumour in prostate, Gleason score of 4+3. Cancer found in 10 of the 12 biopsy cores. Started hormone therapy end of April. PSA now down to 1.I. Have planning scan in July. Probably start radiotherapy around end of August. I am only due to have 6 months of hormone therapy, but I think my oncologist may consider adjuvant therapy if I am prepared to risk side effects like bone thinning etc. I favour having the extra hormone therapy myself from what I have researched in books and on the net. I also have gone red meat free and have very little dairy products - have soya milk and a soya light spread in place of butter.

                                                                  Richard

User
Posted 28 Jun 2015 at 21:27

Hello Richard, just wanted to say welcome to you.
Soya yoghurt isn't bad either.
Good luck with the treatment
All the best
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 29 Jun 2015 at 13:42

Hello Sandra

Thanks for your comments. I should have said I also do have the soya yoghurts. I try and have a very healthy diet, although the diet the hospital is prescribing for the radiotherapy treatment is quite restrictive. Hope that John is doing alright.

                                                           Best wishes

                                                                     Richard

User
Posted 29 Jun 2015 at 16:40

I bought 2 books from Amazon following several recommendations.

'Beat Cancer' by Prof Mustafa Djamgoz and Prof Jane Plant.

'The Plant Programme' by Prof Jane Plant and Gill Tidey.

They both contain lots of sensible, and to me logical, advice regarding diet.

It is pretty much the diet I am following and actually enjoying.

Worth a look if you are not sure what to do.

Steve

User
Posted 29 Jun 2015 at 20:28

I would add to that list 'the Prostate Care cookbook' published by Prostate Cancer Research Foundation UK and sold on Amazon - not as extreme as the Plant diet and researched by proper scientists :-)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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