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Chemo not working

User
Posted 14 Jul 2015 at 15:42

That's great news, Rachel. So pleased for you and Dad !

 

Fiona. x

User
Posted 14 Jul 2015 at 18:45
Rachel it gave me a real lift just reading your post. I am so happy your Dad is up and about and even going to the hospital for his bloods and hopefully next round of chemo. It all sounded so very different a month ago for you.

I am also really pleased that your Dad's hospice team are working so well with him. He would do well to lsten up and use that stick for the time being even if it is just there in case of need. The last thing he would need now is to have a fall when he is doing so well.

You all really do deserve this turn of fortune long may it continue

xx

Mo

User
Posted 14 Jul 2015 at 18:58

What a brilliant turn-around Rachel.

I am so pleased that your dad is able to get around again.

Long may it continue.

We can't control the winds - but we can adjust our sails
User
Posted 14 Jul 2015 at 21:00
I'm so glad I popped in tonight, what a turnaround, go Rachel's dad!

Very happy to read this post

Lots of love

Allison xx

User
Posted 11 Aug 2015 at 14:38

Well it's been nearly a month since my last post.  Dad continued to go from strength to strength after his hip infection.  He has now just had his 2nd round of chemo since the couple of months break, so technically he has now had 5 lots.  He has been suffering again from the extreme fatigue and it has been getting him down.  During one of his tearful moments, he told mum that he has to keep on with the chemo or else he will die.  It would appear from this comment, that he has known how serious things are, but has just been dealing with them in his own way.

 

Dad is due to have his next scan this coming Saturday.  After his last scan, the consultant said he should carry on with chemo as the PSA levels had gone down but the spread had continued.  This obviously meant that the chemo is obviously doing something, even if it's just slowing things down.  For those that are aware of his story over the last couple of months, you will know that due to the infection, the chemo had to be stopped for quite a few weeks, so my concern, is that during this break, the cancer may have spread even more significantly and the PSA may have gone up too.  Will his continued chemo have settled things down or is likely that it wont have been as effective now and the consultant may suggest stopping.

 

For a man who has substantial bone mets in his torso, he has been unbelievably lucky in that he has never suffered any pain as a result of it (only the nasty infection).  The doctors are very surprised that he has not had pain, but then that's my dad for you, doing everything in his own way!!

 

Rachel

 

User
Posted 11 Aug 2015 at 19:09
Glad to hear of dad's improvement Rachel but fully understand the nervousness around the forthcoming tests etc. I have learnt not to try to anticipate too much because I'm often wrong and give myself worry for no reason. Someone here once said "don't cross the anxiety bridge until you have to" I am trying hard to live by that rule though I can't say it's easy.

Lots of love

Allison

Edited by member 11 Aug 2015 at 19:10  | Reason: Not specified

User
Posted 11 Aug 2015 at 20:14
Rachel

whilst your Dad is tolerating the cheo OK and he is generally a lot better than he was a month ago, he is still clearly very poorly. The teraful moments are probably his way of showing that he knows he is fighting one heck of a battle.

The good news really is that he is relativey pain free and treatment is continuing.

We all liken this to a rollercoaster ride but sometimes I think that is unjust, they are at least to supposed to be fun for thrill seekers. I now think of it more like snakes and ladders, things are Ok when you are on or up a ladder but pretty rubbish when you are in with the snakes.

Stay strong Saturday is fast approaching so another scan and more relavent information. The PSA at this stage is probably just an indication of cancerous activity, the scan however will show any progression if there is any.

Thinking of you

xx

Mo

User
Posted 17 Aug 2015 at 17:27

Thanks Allison and Mo.  You have both likened this 'journey' perfectly.  It is indeed like snakes and ladders and it is also true to not cross the anxiety bridge until you need to.

 

Dad had his scan on Saturday, however, looks like he has to wait about a month for the results so will certainly try not to cross that bridge for a while yet!!!

 

Rachel

 

 
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