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Another Newbie ... wife ...

User
Posted 26 May 2015 at 12:35

Cayzdan, what a blow to have two family members diagnosed.  My 54 year old brother got his diagnosis about 3 weeks ago (locally advanced and possibly advanced even though nothing is showing up on the scans), my other brother is waiting for the results of a PSA test as he's had symptoms for ages and my dad is slowly slipping away from another type of cancer.  I've gone from having what I thought was a healthy family to one riddled with serious illness in the space of a few months....

So I really feel for you and know how hard it is to make sense of what's happening. Like you I've found this site to be a godsend (and the lovely nurses at the end of the phone) and I've found out more than I ever hoped to have to know about PCa! It is a strange disease as somebody has said and doesn't seem to follow the same trajectory for any two people.  So there is always hope.  Make sure you look after yourself as well as your nearest and dearest; I'm trying my hardest not to let this situation consume me and am making sure I find the time to do the little things that keep me afloat (walking the dog, coffee with a friend, shopping with my daughter).  Wishing you love and strength x

User
Posted 26 May 2015 at 20:56

Allison, thank you ... however I am sorry you and yours have had to go through so much, but the fact that 4 years on you are still enjoying this new stage of your life ... all credit to you both ... and thank you for sharing your story ... you and others show there is hope, even when you think there is none.

I hope I have the strength of character you so clearly show

Love and best wishes

xx

User
Posted 26 May 2015 at 23:52

Cayzdan

I hope your hubby and brother are able to have banter over a long period of time. Waiting for the complete prognosis is horrible, - you just hope that your hubby finds himself in the curable camp, but as you can see from many threads on here, treatment can be effective for a long time.

As you may have seen on Cobbles' thread, I am thriving after robotic surgery and feel blessed to be in the position I am now. Good luck to both men that they will feel the same in 12 months.

Paul

Stay Calm And Carry On.
User
Posted 01 Jun 2015 at 14:33
Hello cayzdan

You must be feeling like you've been run over by a steam train. My situation is different to yours but similar...

My dad was diagnosed with locally spread prostate cancer in 2002 age 61. It wasn't operable, but he has been on and off hormone therapy and had radiotherapy, and is fit and well, although starting to show signs of his age now (he's 75). He was the sort of person who, like you, me and your brother, needs to know everything. And needs to know it now. He did a lot of searching (well me and my sister did it for him) to find info. His consultant went on two weeks holiday a week after his biopsy, so I went to the hospital and sat in the urology department until they told me the diagnosis!

Eight months ago, my husband was also diagnosed, age 58. His was operable, and he had it removed on dec 1st last year. He is like your husband. Head in the sand, wait and see etc.

There isn't really a point to this, except that it shows how common the disease is. I am sure that, horrible as it is for you, there will be some degree of comfort for your brother and your husband in knowing that they are going through a similar ordeal at the same time. It may take some of the pressure off you. And your brother will be able to pass on all the information he has found to your husband. Maybe some of the pro active attitude will rub off too.

Best of luck

Louise

User
Posted 04 Jun 2015 at 21:45

Dear overwhelmed wife and sister,

When my husband was diagnosed, I remember going to the mall to buy a present for somebody and bursting into tears in the parking lot.  A young attendant offered to help.  I refrained from pouring out my fears to him, thank heaven.  He would never have forgotten it.

Prostate cancer is a horrible journey that you are forced to take, but you are more than along for the ride.  You are the most important support your husband will have.  You can organize the information while he copes with the emotional tsunami.

We wrote an ebook about our experience.  You can find a reference under personal stories: Ebook by a pilot and his wife.  It can be ordered through Amazon, and I'm also putting it on this website, one chapter at a time.

You will make it.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif

 
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