Chris J's Journey

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Posted 05 Jul 2015 at 11:08

Chris, this doesn't sound like the kind of incontinence you feared and no, it doesn't happen that people are dry after the op and then it goes downhill. My guess is that you are sleeping more heavily because of the alcohol and so the bladder messages are not waking you up. Yes, the answer is to drink less alcohol or to set an alarm clock for a couple of hours after you go to bed.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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Posted 05 Jul 2015 at 20:15

Will be deffo cutting back. As you all more than we'll know yourselves we have had a rough few months of it. I didn't want to portray myself as a raving alcoholic haha. I've NEVER in my life drank so much I've wet myself in bed , and I'm not now. For the first 5 days home I was fine , and that included wine and diazepam and sleeping pills ( because my bipolar meds have been removed ). So it was a shock the last two mornings to have a full nappy ( and didn't take pills at all last night ). But generally I've been lucky I know. So easing back the throttle tonight and a traditional cuddle and relax.
Chris

If life gives you lemons , then make lemonade

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Posted 05 Jul 2015 at 22:03

After the op, your brain has to re-learn the weeing signals, just like when you were a toddler. I have no scientific evidence for this but it seems to me that beer disrupts the new learned signals - John has been dry since very soon after his op but over the five years since, the couple of times he has wet the bed were when he had a skinful. It seems to be only beer - wine doesn't cause the same problem.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 05 Jul 2015 at 22:04

Chris,

Thanks for your thoughts about Stuart he is getting a bit nervous about it all but this weekend was a nice one to spend with friends and family with a few drinks! He knows to try and stay off it afterwards, we talked to our neighbour today who has PC and he helped is a lot.

Love to you and your wife xx

User

Posted 11 Jul 2015 at 07:01

Hi folks,
The apparent post- LRP recovery from heaven came to a sharp close last night. Major panic all round . I have been absolutely perfect to be honest and just waiting on the biopsies , histologies / 6 weeks PSA . My continence has remained at 100% during the day ( only 16 days post catheter withdrawal ) , and likewise at night . Only 2 incidents 2 nights on the run which even Dr Lyn and I couldn't work out ( Too much fluid / alcohol/beer/ wine ) I put it down to effervescent Vitamin C tablets I had taken those 2 nights .
Yesterday I met an ex work colleague and sat in the sun drinking beer for a while -- only 2 pints . But instead of being bothered going to the loo , I held it and held it till he left . I was fit to burst and went to the loo hurting . There was quite a bit of blood which annoyed me as I had been bloodless for ages .
When I got home my wife had just arrived with her son ( I have a step-son and daughter with her too ). He resides at a college for disabled adults ( He has Spinal Muscular Atrophy SMA type l-ll .) and was just home for summer. I did the manly thing and help unload the entire car with all the medical paraphanalia , bath chair , toilet chair , 9 months of washing etc , and then went for another wee .
OH MY God. Just pure blood followed by 2 pints of red wee , followed by pure blood . I nearly fainted at the sight but this had happened once before during the weeks so didn't panic too much as it wasn't painful . By the time we had all had a family Chinese , and more beer , I went again and it was the same ( like something from a horror movie ) . BIG discussion followed -- weather it out or Friday night at casualty where you could probably bleed to death anyway. I decided to go to bed and had taken my sleeping tablet anyway , but was terrified of fully clotting and needing emergency catheterisation.
But anyway here I am safe with my tail between my legs and just small blood and few clots this morning. It MUST have been over-stretching the bladder that ripped something initially , and then me trying to help my wife like any man would . Temporarily forgot what i'd had done , and not that long ago ( 3 weeks ) DUMBO . Be Careful post - op
Have a good weekend everyone
Chris

Edited by member 11 Jul 2015 at 07:39 | Reason: Not specified

If life gives you lemons , then make lemonade

User

Posted 11 Jul 2015 at 09:49

Naughty boy Chris J

When I was leaving hospital after my op I was told NOT to lift anything heavier than a kettle for 6 weeks....

Pleased things have settled down for you now...

Take it easy...

Best Wishes

Luther

User

Posted 11 Jul 2015 at 13:43

You're a daft 'un you are.

You'll have to get past the unmanliness of letting a mere woman do the hefty stuff for a while.

Those females among us who have had hysterectomies will know that anything heavier than a kettle is risking the healing process.

So........ don't do it!!

Hope progress continues and no more panics

All the best
Johsan

We can't control the winds - but we can adjust our sails

User

Posted 11 Jul 2015 at 15:04

Having RP is pretty similar to Caesarean section in terms of which muscles are cut and organs rearranged. I was told not to lift or hoover for 6 weeks but told John it was 6 months ..... and got away with it!

Seriously Chris, it was a pretty stupid thing to do!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 11 Jul 2015 at 15:09

Thanks Lyn
Just seen u on here. I just didn't realise and its set me right back to be honest. I knew it walking the dogs this morning. In pain again. Feel stupid but not bleeding now x

If life gives you lemons , then make lemonade

User

Posted 11 Jul 2015 at 16:46

Hi Chris,

Oh what a shock it must have been for you, I have read this out to Stuart too as he was lifting the case from the hospital this morning and I had a right go at him he seems to think he's absolutely fine after 2 days! Stuart also likes a few pints so I think reading your post has put him off thinking of having any alcohol for at least a couple of months now (he was probably thinking of having a pint after catheter removal) take it easy Chris as this is you're time for recovery. I can see things will be busy at home with your step son home for summer but only do what you are able to do like maybe giving El a break by cooking dinner etc.

Love to you both

Trish and Stuart

User

Posted 13 Jul 2015 at 11:15

Hi all ,
Really annoyed that the excellent job my surgeon did re continence has been spoilt since my " accident " last Friday and all the bleeding etc. I've been sore again walking and generally uncomfortable. I filled my TENA 3 pad Saturday night and have been having urgency yet very small wee,s.
Last night I went to bed but had to sit nearly 7 times to empty tiny squirts out , instead of a proper wee. I've not had my follow up appt yet and don't know whether to fone.
SO annoyed for holding that huge wee in Friday. That's what tore something. Feeling down now

Edited by member 13 Jul 2015 at 11:16 | Reason: Not specified

If life gives you lemons , then make lemonade

User

Posted 13 Jul 2015 at 14:58

Chris

If your urinary performance has changed so significantly maybe you should get things checked out. You did do some pretty crazy stuff that could have caused some damage. Better to get it checked sooner if it is causing you concern or discomfort.

User

Posted 13 Jul 2015 at 15:11

Get it checked Chris.
The urgency and the need for tiny spurts may just be an infection

Best to ask somebody who knows

We can't control the winds - but we can adjust our sails

User

Posted 13 Jul 2015 at 15:44

Yeh I kind of agree Mo , Sandra
But really what will they do ? Anything ? But tell me to rest ! I have had a lifetimes supply of Antibiotics in the last 12 months , and because I developed Neutropenia in hospital and had to be isolated ( only 2 weeks ago ) they put me on Elephant antibiotics just in case I caught anything . So if I do have an infection it should be covered anyway ??
Calling tomorrow , as not had an appt anyway for follow-up and need to arrange a blood test for PSA and Neutrophil count

I really didn't do anything Crazy Mo . Not really . Just real life if you know what I mean
Chris x

Edited by member 13 Jul 2015 at 15:46 | Reason: Not specified

If life gives you lemons , then make lemonade

User

Posted 13 Jul 2015 at 16:46

Erm, you forgot that you had major surgery and did a load of lifting. You might have torn some internal stitching; I would want to get advice I'm afraid.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 13 Jul 2015 at 21:49

Ok Chris

I maybe was a bit OTT when I said crazy .. like lifting all that stuff,using the pump and all of that within days of being back home ?!! . During surgery your bladder was almost certainly disconnected from the Urethra and stitched back in place. What you are experiencing now could be as a result of strain to that area.

The antibiotics they give you for neutrophilia or other things are not necessarliy ones that would work for a UTI , even broad spectrum anti biotics do not always work for them.

Rest is a relative term my friend. pottering about in the garden or taking the dog for a walk is OK, even having a little lightweight DIY or El fondling is fine after catheter is out and a couple of weeks but trying a full on job with the pump and lifting a whole load of heavy stuff probably isn't.

Just saying this because I worry for you.

User

Posted 14 Jul 2015 at 07:51

Ok
I was going to start this with " I didn't use the pump full on - just trying to get some blood in there ..............

But i've been internet spanked by the Doyens , and its been taken proverbially on the chin ok

Over and out Chris xx

If life gives you lemons , then make lemonade

User

Posted 14 Jul 2015 at 07:54

I'm with you on this Mo and Lyn. Sometimes I could just shake our men!!

Time is now on your side Chris.

What are a few weeks/months in the wider scheme of the rest of your life.

Anyway, I know by now that you regret the exertions but I do understand that initial moment when you are not feeling too bad and just get stuck in, especially if there was a lot of lifting for El to do.

What's done is done and now it's concentrate on recovery time. Get advice just in case you did tear any stitches (you will certainly have irritated an already irritated bladder by filling it up) and then try and relax.

It will all come good in time. Note that special word time, so give it some!!

Otherwise you'll end up having us women nagging you AGAIN!! (and we will because we care)

Edited by member 14 Jul 2015 at 07:55 | Reason: Not specified

We can't control the winds - but we can adjust our sails

User

Posted 14 Jul 2015 at 08:44

Hi Chris,

Hope everything is better for you soon.

Take care.

Steve

User

Posted 14 Jul 2015 at 08:50

Originally Posted by: Online Community Member

Ok
I was going to start this with " I didn't use the pump full on - just trying to get some blood in there ..............

But i've been internet spanked by the Doyens , and its been taken proverbially on the chin ok

Over and out Chris xx

Ha Ha Chris, we are a bit like the witches of Eastwick you know but we only do it because we worry for you.

Internet spanking ...mmmm that was a first for me

Take care our friend

me also O&O

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