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Chris J's Journey

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User

Posted 19 Nov 2015 at 10:29

Chris,

Great to hear. You were overdue a bit of good news.

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE

User

Posted 19 Nov 2015 at 11:02

Thanks for your replies all. Need to just really wind down now if I can . I'm like a spinning top just in control .
Its tough as most of you know better than I . Such a long intense experience from diagnosis, with seemingly no end for most.
Thanks
Chris

If life gives you lemons , then make lemonade

User

Posted 19 Nov 2015 at 14:53

Great news Chris, really pleased for you. Settle back and have a great Christmas with the family, when it arrives.

Steve

User

Posted 19 Nov 2015 at 16:03

Great news Chris

Time to relax as best as you can

Arthur

User

Posted 19 Nov 2015 at 20:20

bet you had a bounce in your step after that news Chris enjoy xmas all the best Andy

User

Posted 19 Nov 2015 at 22:53

Hi Chris

Same here mate, good news.

Enjoy your Xmas with family and try to forget about April for a wee while.

Sandy

User

Posted 19 Nov 2015 at 23:02

Brilliant news xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 20 Nov 2015 at 09:47

Top News! :-))

User

Posted 02 Dec 2015 at 17:43

Hi All
Elaine and I saw my family GP today for the first time in ages. It was a great review of Onco appt , Uro appt and tummy pain , ED issues , adrenal tumours and re-scan in a fortnight , and also Psychiatry review. If I was a horse I wouldn't be good enough for glue I reckon.
One thing that struck us both is that we haven't had ONE single letter about my cancer. It has all purely gone to GP and not been copied to us. He turned the screen to us and we read the latest Onco letter together. We were dismayed to read that the " future RT would not offer any increase in life expectancy but would purely prevent a recurrence of cancer in that area and the associated symptoms ". Grim heh !!
I know I'll get to March ( planning scan ) and then bottle-out again. I'm all done being fiddled with tbh.
Thanks everyone for utterly invaluable support.
Chris x

If life gives you lemons , then make lemonade

User

Posted 02 Dec 2015 at 18:28

I like to have all the paperwork relating to John's cancer and everywhere we have been I have asked for it. If I am any missing I ask the GP receptionist to photocopy their copy and let me have it and so far they have been very willing.

If you really want to have a record of the processes you have gone through then perhaps ask the receptionist?

I am sorry that the written words you did see offered you no encouragement.

Easy for me to say but forget March for now. Live for these magical times for Peter, make his memories now while you are fit enough to enjoy them with him.
March will come quickly enough I know, but there is nothing you can currently do so make the best use of the season.

You will get pleasure (and sadness) out of it I know but do your best for your little man.

Chin up young man. You can do it. x

Edited by member 02 Dec 2015 at 18:39 | Reason: Not specified

We can't control the winds - but we can adjust our sails

User

Posted 02 Dec 2015 at 18:42

Really feel for you Chris, sorry how you and Elaine had to read the letter on GP screen not the right way , if I remember he was not positive previously and urologists was more hopeful have you heard anything from him, keep going mate will be thinking of you Andy

User

Posted 02 Dec 2015 at 19:32

Hi Chris

Sorry to hear this, not the proper way to find out.

I didn't have all the paperwork either until I asked for copies to take for a second opinion, these were given with no problems as you are entitled for a copy as it is your personnel details.

I really believe that given what was in the letter you should have been informed.

Sandy

User

Posted 02 Dec 2015 at 20:02

We've not been let down exactly. The Onco told us the same in a roundabout way tbh. And my GP is absolutely lovely. I guess it was just hard to see it written down when it took us so long to pry it out of the Onco verbally. But yes xmas going to be epic. And no real worries. And March is a while away and brighter mornings.
Chris

If life gives you lemons , then make lemonade

User

Posted 02 Dec 2015 at 21:58

Hi Chris,

Not the best way to receive such news mate, it should have been handled very differently. You are not the only one to be given bad news handed to you like a house brick in the face. One of my PSA tests was given to me verbally as thew wrong number and when I asked about the apparent rise, and expressed concern, the Doctor told me that "You don't need to jump off a bridge yet". Knobs all.

Chris, you have come along so far since you started, and overcome and dealt with so many issues, and the next few months will be no different. You may get to March and bottle out, but you have thought that before, and then you have summoned the courage to crack on and move forward, get treatment and move on.

And if you have a wobble, a big wobble or a total melt down, we'll be here to steady you young man. And we will all cross that March bridge with you when it comes.

You have a good weekend, plan to have a great Christmas, put OTT lights up, put cheesy songs on and enjoy.

atb

dave

Do all you can to help yourself, then make the best of your time. :-)

User

Posted 03 Dec 2015 at 00:32

Well you know my view - I think it will be fine to get to March and decide that RT is not a sensible forward plan. I assume that what the onco was saying was that because he doesn't believe the remaining cancer is in the prostate bed, RT to the prostate bed is a bit like a shot in the dark. So be it - maybe after the winter you could push for a repeat scan or get onto the trial John is doing with the new super sensitive scanning agent to see if any hot spots show up? If at some point in the future the scan produces a glowing area you might feel that RT to that area has a purpose and that would make it much more a good option.

No point stressing now though - you can decide you aren't doing it (but not actually tell the medics that yet), put it away in a box and get on with coping with everything else.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 03 Dec 2015 at 00:35

Chris

It is reading stories like yours that make me realise how lucky I am. I hope you will be able to face everything full on when the time comes. Meanwhile, have the very best Christmas you can.

Paul

Stay Calm And Carry On.

User

Posted 03 Dec 2015 at 09:59

Hi Chris

I am so sorry to hear this news but the strength of the forum really is behind you all the way.

Thinking of you at this difficult time. You may not agree but from the way you have handled your PCa journey and associated problems you have earned my utmost respect and admiration and this has helped me with my own journey (which is nothing as difficult as what you are going through). I cannot thank you enough for this. I do hope that somehow it will all work out alright in the end for you and your family.

Sending you my best wishes.

User

Posted 03 Dec 2015 at 15:33

Yes just to echo what countryboy said,my husband and i were told by hospital registrar when we went for biopsy result,

"Well youll be pleased to know your cancer hasn't got any worse",that was a bolt from the blue as this was the first time we had been told he had cancer!! Our best wishes to you.

User

Posted 03 Dec 2015 at 22:23

HI Chris,

I can only echo the wise words you've already received from the wise people on this site.

Christmas is the thing for you now - March is way out there somewhere !

Very Best Wishes To You And Your family

Cobbles

User

Posted 04 Dec 2015 at 13:59

Read your thread pal.
As commented by William what a strong mindset you have.
Have a brilliant Xmas.
Adios

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