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Chris J's Journey

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User
Posted 25 Aug 2015 at 19:34
Good luck on Thursday Chris and enjoy night away fro the little one!!

User
Posted 25 Aug 2015 at 19:49

And hopes and good wishes on your journey too Chris.
Good luck and all the best to you and El
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 25 Aug 2015 at 20:08

God luck for those dates Chris. Hope you all had a good holiday?

dave

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 25 Aug 2015 at 20:34
Hope you had a good holiday.

Wishing you all the best with your forthcoming appointments.

User
Posted 25 Aug 2015 at 20:40
Good luck Chris

Xx

Mo

User
Posted 25 Aug 2015 at 21:34
Good luck, Chris

Arthur

User
Posted 25 Aug 2015 at 21:58

So pleased to see that you have been offered the PET scan - usually, we are reading about people having to fight to get one. Give the little'un extra cuddles tomorrow x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 Aug 2015 at 08:29

Best wishes Chris. Hope the holiday went well. Good luck with the treatment.

 

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 27 Aug 2015 at 10:19

Argggh
That's right just cancel my scan at 9am just before I set off . Now ive got to try to get my money back off Premier Inn although I did their non-returnable saver booking . And now cancel Onco next Wednesday again etc etc. And all the while the PCa is festering away inside of me
Apparently the Choline radioactive isotope is really hard to make and last nights production failed . So I suppose they have a good reason and were very apologetic
Stress overload

If life gives you lemons , then make lemonade

User
Posted 27 Aug 2015 at 12:28

Well good reason or not, it doesn't help you does it.

Sorry for your extra stress Chris. Hopefully Premier inn will be generous, if you write and explain.

We can't control the winds - but we can adjust our sails
User
Posted 27 Aug 2015 at 13:44

Nightmare so annoying, I feel for you as more waiting.....

User
Posted 27 Aug 2015 at 18:05

Hi Chris,

That's really frustrating.  I'm so sorry this happened, not what you wanted at this time or anytime.

I do hope they can rearrange fairly soon for you.

You've had a lot to cope with, you deserve some better luck.

Steve

 

User
Posted 03 Sep 2015 at 13:02

Argggh
So this week I check at 12pm exactly whether the scan is still on. And it is on !! Great .
Fifty miles up the A34 Oxford Churchill phone me and tell me its off again . WTF . Really
Now to try and cancel Premier Inn again . Probably not so lucky this time
Very very stressed.

If life gives you lemons , then make lemonade

User
Posted 03 Sep 2015 at 19:06
That is shocking Chris

Get your medical team at home onto this. To cancel once was bad but twice given your known BP issues and concerns over your PSA is outrageous.

I really am so sorry

Xx

Mo

User
Posted 03 Sep 2015 at 19:14

Thanx Mo. I actually don't have time to be Bipolar anymore! I called my specialist nurse en route home and actually got to speak to my surgeon. He really tried to reassure me all was not lost yet and if anything the extra wait may give them a better scan which will guide my salvage better. I can't be furious as my treatment has been amazing thusfar. I've got big bladder pain all the time which is terrifying me and he said to check for infection. I did that as soon as I got home. The nurse said I was clear but is sending it to lab for full test.
Worried !!
Premier Inn have been amazing but said it was my last refund. God bless them
Chris

If life gives you lemons , then make lemonade

User
Posted 03 Sep 2015 at 20:25

Grrrrrr.....I don't think I'd be as calm as you sound right now if it was me....so well done that man...

User
Posted 03 Sep 2015 at 21:08

It would have turned me into an angry young, sorry, old man. Hope it all works out in the end.

Paul

Stay Calm And Carry On.
User
Posted 03 Sep 2015 at 21:15

Hey Chris,

I live about 26 miles and, according to Google maps, 38 minutes from the Churchill. Next time you are due to go there, and need a rom, let me know, I may be able to offer you a bed overnight, either before it your appointment if it is early morning, or for the evening if it is later in the day?

Not promising as I am away a lot, but it may work out okay?

Nice of Premier Inn to do the decent thing by you though.

atb

dave

 

Edited by member 03 Sep 2015 at 21:18  | Reason: Not specified

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 03 Sep 2015 at 21:25

Dave
Many thanks ! This time the hospital were so late telling me that I wouldn't normally have got my money back anyway even if I'd booked the safe way. So next week it is either do it all in a day ( not that bad but didn't want to irradiate my son ) , or risk booking the room on the hour , or turning up at yours with a Chinese and wine

If life gives you lemons , then make lemonade

User
Posted 03 Sep 2015 at 22:53
Not you too Chris, at least Steve's trip only cost £10 return on the train which the hospital have now offered to refund!

We've got everything crossed for you.

Maureen & Steve x

"You're braver than you believe, stronger than you seem and smarter than you think." A A Milne
 
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