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The War that no-one wins

User
Posted 25 Mar 2015 at 13:02

Bazza

Lucky enough to be around for 10 years in which time I’ve read many posts, this is one of those that will stick in my mind. Great post – keep posting like that for many a year and more

Ray

User
Posted 16 Apr 2015 at 18:31
And so after an 83% PSA drop to 0.36 after supplementing my Prostap with Casodex, I had a slight rise six weeks ago to 0.43. This week, alas, my PSA has risen again to 0.94. With limited armoury, it looks like I will very soon start that inexorable fast slide to full blown metastasis and, ultimately, death. My onco has suggested I consider going on a Spartan trial but I'm not sure what this is or if it will be any help. Any one in the know, I'd be grateful to learn more.

A very despondent Bazza.

Edited by member 16 Apr 2015 at 18:46  | Reason: Not specified

User
Posted 16 Apr 2015 at 18:52

Bazza,

Here's a link:

http://public.ukcrn.org.uk/search/StudyDetail.aspx?StudyID=15067

and contact details.

Flexi

 

 

User
Posted 16 Apr 2015 at 19:38

Bazza,

As I read this the Spartan trial is for non-metatastic PCa so if this is being suggested does that not mean that despite some castrate-resistant it is still confined to the prostate. That is not a fast slide to me, that is still hopeful and a long way yet to go.

User
Posted 16 Apr 2015 at 19:44
I have no prostate. The cancer is in two nearby lymph nodes, albeit microscopic
User
Posted 16 Apr 2015 at 21:15
Bazza

I am so sorry you have had this result. we know how hard the journey has been for you with so many ups and downs.

The increase in PSA must be a cause for concern especially after you have already had surgery and salvage RT but there are still treatments out there and options for you.

Lots of men on here start out where you are now and are still living a great life so please until you have more information do not despair.

The Spartan trial might be just right for you especally as you are Spartacus ... at least look into it.

Thinking of you and your family

xx

Mo

User
Posted 16 Apr 2015 at 22:20

Oh Bazza, or  as Mandy says Spartacus,

I know how hard you struggle with your thoughts and a rise in psa will no doubt bring you down, but please hold those thoughts in check you have so many options still on the table. 

Try and stay strong you are Spartacus.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 22 Apr 2015 at 21:04

Bazza,
My O/H was diagnosed 24 months ago., with metastases in the spine, ribs and shoulder prostae cancer, a Gleason score of 7
and a very sure outlook. He started off with Casodex, as well as a Prostap injection 3-monthely. He came of the Casodex in June, and went on to Abiraterone He has been on these meds. since June last year, and until seemed to be doing well. His PSA, which in the beginning was 270, with his Alk. P 290. That has come down, and so has his PSA, but only to 93. Deep disappointment.! Onco. now suggesting monthly PSA tests, and then a possible move on to dextrmorphone???!!!. When I asked him about Alpharadin, he said Oh, Yes, we can try that too. It all seemed a bit casual. he had had the usual side effects of fatigue and hot flushes. However, last Friday, his mood completely changed, for absolutely no reason, and he has been really perky the last few days. Maybe it is the sunshine.

THANKYOU SO MUCH FOR YOUR LOVELY POST. IT BROUGHT A TEAR TO MEY EYE, AND A LUMP TO MY THROAT, BUT I FELT SO MUCH BETTER
jENNY

User
Posted 23 Apr 2015 at 09:24

Bazza. I too am sorry that your PSA has risen. As Mo rightly says there are many other options available to you. For someone as insightful about life I think you will fight on and never accept defeat. Hopefully much more life to savour yet .. Cheers Georgina

User
Posted 15 Feb 2017 at 21:07
Talking of old posts, here's one from my archive which for me means more than ever now that the bones are giving way.

Bazza

User
Posted 15 Feb 2017 at 22:03

Ah yes - one of the greats. One day (hopefully not for a long time yet) you will leave us and I shall share this on your anniversary to help new people make sense of the journey some will tread.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Feb 2017 at 22:32
Thank you Bazza for bringing this back to the front of the forum although our writing is similar 😉In so many ways ( we could have been twins) . Seriously that is one of my most favourite posts ever , its in my memory hall of fame .

B FN

Julie Xx

Yes that's a double kiss

NEVER LAUGH AT A LIVE DRAGON
 
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