dealing with diagnosis

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User

Posted 14 Mar 2015 at 21:46

It is only two months since his operation and many men have a 12 week sick note post-op - not necessarily because they still have surgical problems but because major surgery knocks your stuffing out. All energies in the body are directed towards healing. Add to that the emotional impact of diagnosis, the news that he didn't necessarily get the cure he had opted for and further treatment is needed and then side effects of the HT and it is no surprise he is fatigued.

It seems that they are not saying he has advanced PCa - simply that there is a non-defined shadow that needs to be identified. Presumably they are going to scan him again after some HT and will then decide whether to go for curative RT or whether long-term management is the route. If I have understood correctly, it is too soon to be thinking about the circumstances that some of the other wives are in and you may, like me, end up with a husband who had treatment and then moved on with his (cancer-free) life. I do hope so :-)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 14 Mar 2015 at 22:43

Hi LynEyre, and the many others- Yes, the plan is for HT and then re-scan to see if the suspicious area has shrunk. Then they will probably discuss a plan from there. I am still hoping it is more like a locally advanced rather than very advanced, but from what I am reading, even with wide spread mets, some of the men on here have done really well with various treatments. Amazing really, what can be done these days.

I think they want to re-do all the scans, to check bones and organs. We shall see.

Today I have felt much more hopeful and relaxed again. I guess it's just the unknown which is so daunting, as all of you must already have experienced. I hope that Pete doesn't experience too many horrible side effects from HT, and that he doesn't get too moody :-/ !!!

He plays guitar and is in a band, he writes his own music, and it is a great outlet and focus for him.

I hope we can journey through this without PCa being the focus, but life being the focus and PCa fitting in to life, if you see what I mean?!

Also, even though we knew there were positive margins after surgery in the bladder neck, I am hoping it's a good sign that PSA already has dropped from 46 to 0.9 before another therapy on top?!

SO glad we have this forum, it is already proving a real comfort and inspiration. Thank you to all!

'Sorrow looks back, worry looks around, but faith looks up'

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