hello...wife of a newbie - Gleason

Hmm, that (in bold) maybe.

But, IMHO it is yours too, his and yours, to deal with.  What affects he has will effect you too.

Okay, so he is carrying it, but it will impact on you.  He should have some consideration of that.  

Dave

Edited by member 20 Jan 2015 at 06:23  | Reason: Not specified

Hi Whiterose

I couldn't agree more with the other folk that have said well done you for getting your man tested. There is no doubt that some men understandably get anxious even when diagnosed with low Gleason localised prostate cancer but from what you say your man is quite chilled about it. My Gleason is 7 and I'm quite chilled as well although it's important (to me at least) to look at the various treatments and choose the right one for the individual, whether active surveillance or something else. I imagine many men just want to get rid of the cancer whereas others would feel comfortable with being monitored.

That's the great thing about life - we're all different.

Good luck and well done you for doing your bit for your man. I have a friend who when diagnosed his wife said "it's your problem - you sort it"!

Thank God for women like you and my lovely lady, who also persuaded me to go to the doctor.

dl

Edited by member 23 Jan 2015 at 19:19  | Reason: Not specified

Hi Sue,

Well what can I say about this can of worms, should you have opened it HELL YES. This is a conversation that I have had with Mandy many times us lady's are pretty good with a can opener and oh how I wish that I had done this years ago for Trevor. You have done the right thing, awareness is a powerful tool.

BFN

Julie X

Gleason 6  ONLY 6,  My Gleason scores are below, so you are ahead of me already!   And I am still here nearly 19 moths later.  Cut me some slack and let me enjoy this fact please.

Gleason score 3 + 4 = 7
PSA: 5.6
Biopsies positive to cancer: 3 of 8 sites
Tumour: T2
No evidence of metastatic or extraprostatic disease

12 June 13
T3
3 + 4 = 7
10% of gland is cancerous
No positive margins, all clear

scores 

Being practical now:

1. Have a list of questions that you want to ask and get answers to before you meet the Uro.

2. Write them down 

3. Take a notebook with your questions, and a pen to record the answers given.

4. What treatment options do that NHS trust offer?

5. Can they refer you to another NHS trust if you decide to opt for a treatment that is available elsewhere?

6. What is that surgeons, if you go with them, success rate?  This is measured in terms of life after OP, continence, survival, ED regain.

7. How long is the average stay post treatment?

8. What has been the longest stay post op?

9. What would they opt for in your position?  Some will not say, but, if you get to talk to the man or the women inside the "Doctor" they may open up and tell you?

10. Others will hopefully come up with other questions for you.

Look, you have done so much for him so far with regard to the early diagnosis, and you are clearly THERE for him, he IS indeed fortunate to have you on his team.   

ATB to you both tomorrow.  All my digits are crossed for you.

Dave

Edited by member 30 Jan 2015 at 20:21  | Reason: Not specified

xx

MM

PS

Dave may have the zaniest sense of humour but he is also very clever his advice here is brilliant for going in prepared.

xx

Edited by member 01 Feb 2015 at 09:27  | Reason: Not specified

sounds like Alan is getting proper AS ie with scan to benchmark, quarterly PSA checks and repeat biopsy in 12m The decision means no side effects although of course the trauma of knowing is bad enough.

I have edited my reply before this to reflect the fact that even though Dave is a crazy like me his advice was excellent.

Keep telling us how you are both getting along and post for others as your expertise will be invaluable on this forum.

xx

Mandy Mo

So much new research is supporting genetic mapping for cancer as bespoke treatment might be the way forward in the future especially when it transpires that drugs never previously used for a specific cancer, can be far more effective and with far fewer side effects.

I wish I was 40 years younger and just starting out in a career as the whole subject of molecular genetics and research is fascinating

Xxx

Mandy Mo

M M