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Chemo has started!

User
Posted 14 Jan 2015 at 20:45

Rachel, the green tea and pomegranate juice are among the many super-foods that are supposed to be help fight prostate cancer. Broccoli, tomatoes and turmeric are also supposed to be good although I did read something that suggested that turmeric might reduce the effects of chemo. The tea also helps Tony keep up his fluids, as he's supposed to drink a couple of litres of liquid a day. He has found that he quite likes it cold as well, and discovered an old green teapot at the back of a cupboard, so he makes a big pot of green tea in a green teapot every morning and drinks it during the day. Can't do any harm, I suppose.

Marje

User
Posted 15 Jan 2015 at 18:39

Marje

 

Thanks for that, I shall pass on this info to my Dad.  See if he likes pomegranate juice and green tea.  Does this mean I might have to buy him a special green teapot for his green tea!!!! 

Rachel

 

User
Posted 15 Jan 2015 at 20:15

I think research is sadly lacking as to the importance of the teapot being green, but who knows? I have also found a green storage jar for the green teabags, which certainly helps to avoid confusion with other teas, and gives the whole green-tea ritual a pleasant harmony.
Makes no difference to me, though, I can't stand tea of any colour!
Marje

User
Posted 16 Jan 2015 at 06:13
Hi piglet, so reassuring to read your posts as I am about a month behind you. Day 3 after chemo and feel ok apart from a tummy issue for a couple of hours yesterday. I have become a green tea fan, organic naturally de caffeinated if you can, plus pomegranate, tomatoes, broccoli and walnuts. The inter web is such a confusing thing with so many suggestions ( I was advised scorpion venom yesterday from a Cuban) and I am sure there is an element of truth to them all but one thing the PCUK Kings x event taught me was that we also have to enjoy the now so I can do the changes I have made ( I have reduced red meat, fried food, dairy, eggs and generally upped a wider range of vegetables) but not at the expense of a few drinks, 2 packets of crisps followed by cauliflower cheese if I fancy it a couple of times a week!

Please keep posting as I am reading with interest, today is a good day, Kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 16 Jan 2015 at 09:07

Good to hear that it's all going well, Kev. Tony has had a slight complication this week as he has some symptoms of a chest cough that I'm just getting over, right at the point in his cycle when immunity is lowest. The hospital did blood tests and gave him some pre-emptive antibiotics and other medication. He doesn't really feel ill but his white corpuscles are low, as we'd expect. It's possible that the next infusion, due a week today, may have to be postponed if the next blood tests are not back to normal.
Apart from that he is eating like a horse - he finds he is hungrier than usual, probably because of the steroids. He eats lots of the right things but also too much of the wrong ones too (sweet stuff, cheese, wine, beer...) but as you say, you need to live in the moment and enjoy it. Our hospital dietician advised against cutting back on dairy, as he has bone mets and needs plenty of calcium.

People ask me anxiously how Tony is, imagining that he's languishing on his bed, and they are quite surprised when I tell them he's out scarifying the lawn, or dismantling old wardrobes to take to the tip.

Marje

User
Posted 16 Jan 2015 at 19:02

." Our hospital dietician advised against cutting back on dairy, as he has bone mets and needs plenty of calcium. "

 

Some of us who have gone dairy-free use a calcium/magnesium/boron supplement or just get sufficient from dark leafy green veggies in particular. Thus avoiding the unhelpful stuff in dairy which the dietician may not be aware of regarding prostate cancer.

User
Posted 16 Jan 2015 at 21:01

Alpro soya milk provides plenty of calcium

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 30 Jan 2015 at 22:06

Tony continues to tolerate the chemo well. The onco says he's "at the extreme end of the spectrum of tolerance"; I suppose this is just luck, but let's hope the luck extends to the benefits gained from the chemo.

He's now had three of the six infusions and recognises the patterns. Day 3 - 5 are when he feels a bit achy and tired, with disturbed sleep patterns, but by today, Day 7, he is more or less normal, perhaps a bit lacking in physical stamina, but still pretty fit. His sense of taste is beginning to alter, with water and oranges tasting odd to him, but other foods (and wine and beer) continue to appeal. He knows he'll feel pretty much OK for the next two weeks now.

We have thought and researched, Rob and Lyn, about diet, and Tony has decided to cut out dairy foods. We have stocked up with soya milk, yoghurt etc and he's considering a calcium supplemental, as both the hormones treatment and the bone mets increase his calcium requirements. We also eat a lot of other good stuff - lots of fruit and veg, nuts etc.

I am still confused about this, because both the dietician in the chemo unit and one of the PCUK nurses recommend continuing with dairy products. I thought high-fat items would be the ones to cut out, but there seems to be some research suggesting the opposite: that a diet with a lot of low-fat dairy produce is more strongly linked with Pca. Have any of you had any authoritative advice froom a dietician along these lines? I'm just curious, as there seems to be such conflicting advice out there. Also, there is more info about preventing Pca than slowing it down when it's already advanced.

Otherwise, there are no major issues and so far Tony has no regrets about opting for early chemo.

Marje

Edited by member 30 Jan 2015 at 22:10  | Reason: Not specified

User
Posted 30 Jan 2015 at 22:28

Hi

As you say there is lots of conflicting advice...what's good for you one day isn't the next.

Your OH is going through some major treatment. I would be tempted to listen to what the professionals are recommending rather than googling or even following advice on hear over that of the professionals working with him. But that is just my opinion

Take care

Bri

User
Posted 31 Jan 2015 at 04:05

Marie, while I understand why you would want to make dietary changes, I am not sure this is the right time to do so. Those specialists know the best ways of getting patients through chemo and right now, it is important to keep his strength up. Although Stan had a very prostate-healthy diet even before he knew about prostates, while on chemo the hospital encouraged him to eat loads of ice cream, custards, creamy puddings, etc.

Once the chemo is over with, you could buy something like the prostate cook book from Amazon - this acknowledges that most of the research into diet is about avoiding foods that might cause PCa later in life and there is very little research to support the notion that the same applies to men already diagnosed. However, the cook book does identify research about some foods that men with advanced PCa should avoid as well as some foods that appear to slow cancer progression.

Re your comments about high fat - low fat, my understanding of the research is that it is the amount of growth hormones in dairy foods that is the problem rather than fat content.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 31 Mar 2015 at 16:19

Just to update this thread: Tony has now had his final chemo infusion (of 6). He has continued to tolerate it very well, with few problems or side effects. His sense of taste is mostly OK, with some distortion of certain fruit tastes, and sometimes meat wasn't as tasty as it should have been, but these were only occasional blips. He gets more tired than usual and lacks physical stamina, but he's been able to keep up most normal activities, even in the week following the chemo. He is more bald than ever, and has to protect his scalp in bright sunshine. (Our cheeky grandson callled him"Mr Potato Head"!) He feels generally pretty well and in good spirits.

His nails are beginning to get lumpy and ridged. I don't think there's much we can do about this, although I gather than in some European countries they are given special gloves with frozel gel in the fingertips to wear during and after the infusion, which is supposed to help. Has anyone come across this?

Re his diet: he insists on staying dairy free, but eats lots of healthy alternatives. I bought the Prostate Care Cookbook from Amazon (for 1p plus p&p, almost new) and are trying out some of the recipes.

His PSA is still falling, from his alarming 4-figure level last September to 3.7 (I think) at the last count.

Having chemo at this stage, soon after diagnosis, is a new and somewhat experimental strategy. Tony's onco is watching with interest, as he is the only one of her patients so far so try this. Hopefully it will buy him a few extra months or more of good-quality life. Summer, here we come!

Marje

Edited by member 31 Mar 2015 at 17:32  | Reason: Not specified

User
Posted 31 Mar 2015 at 17:25
Marje

Great update everything sounds about as good as it gets. Tony feels good, PSA has dropped into low single digits and you are looking forward to summer.

It is my honest opinion that having chemotherapy this early is key in advanced PCa, hopefully results like your husband has had and those emerging from the stampede and other trials will encourage more oncologists to follow this course of treatment when possible and appropriate.

Best wishes

Xx

Mo

User
Posted 31 Mar 2015 at 17:27

Hi, Good to hear he has tolerated his treatment well.Atb,El .

User
Posted 31 Mar 2015 at 18:46
So delighted to hear this news, as many here have said, early chemo may offer a really good chnace of a decent period of remission.

With kindest regards

Allison

User
Posted 31 Mar 2015 at 19:43
Hi Marje

Great to hear hubby is doing well. Like him I had a wobble with chest infection but seem to be getting over that. I had round 4 last week, my finger nails are fine as I have been putting on hand cream twice daily ( Norwegian hand and nail cream) but I forgot my toe nails and as I have been running loads all my toenails have gone black, something that has never happened before. It's probably too late to do anything about it however I will have a go with the cream. I like your oh have a distorted sense of taste now despite frozen pineapple ( although who knows what it would have been like without) , hair loss but feel ok most of the time, well 95% which is good enough for me.

I run the Brighton marathon in 10 days, can't wait, I also appear to br PCUK poster boy in this months men United publication due to running on chemo.

I say all these things on your thread to 1) thank you for your posts as they were/are a comfort for me as I went on chemo and 2) for others reading this thread to prove that you can still do stuff. My consultant continues to be supportive of what I am doing.

Thanks again, keep posting.

Kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 01 Apr 2015 at 12:26

Hi Marje,

I was diagnosed over two years ago with extensive spread, i was started straight away on Chemo and had excellent results, somewhere on my threat are bone scan pictures of pre-chemo and after chemo.

Really hoping hubby gets good results as well

Si x 

Don't deny the diagnosis; try to defy the verdict
User
Posted 01 Apr 2015 at 17:35

Sorry to hijack your post,Marje, glad you are feeling better ,Kev.  Poster boy!!! Wow.El.

 
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