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Radiotherapy Completed - A New Challenge Begins

User
Posted 09 Feb 2015 at 10:23

Stuc,

This liquid intake was on the advice of my Lead Radiologist. When she asked how I was managing at the end of the first week, I mentioned that I was finding the waterworks a wee bit fiery, so she asked how much I was drinking, I said about 2Litres a day, her reply was 'double it and you will find things easier'. So I did and found peeing a lot easier. In retrospect, think I could retract the + after my 4 Litres statement.

Thanks for the advice on the sodium. I will now level back to about three litres for the next week.

Kind regards,

Tamtoot

 

User
Posted 09 Feb 2015 at 10:37

Stuc,

I think you are on to something there. Having looked it up on the internet, it would appear by my drinking too much water I may have induced Hyponatremia which could have caused some of the problems I had encountered over the last week or so, such as:

  • Nausea.
  • Headache.
  • Confusion.
  • Loss of energy and fatigue.
  • Restlessness and irritability.
  • Muscle weakness, spasms or cramps.

 

Good advice. Thank you

User
Posted 09 Feb 2015 at 12:37

What a difference a day makes...

Please excuse my rant last night re the state of my bowel.  Things are now moving and I can only apologise to you all for feeling sorry for myself. My concerns pales into insignificance against the stories of others out there much less fortunate than I.

 

User
Posted 09 Feb 2015 at 23:04

Originally Posted by: Online Community Member

What a difference a day makes...

Please excuse my rant last night re the state of my bowel.  Things are now moving and I can only apologise to you all for feeling sorry for myself. My concerns pales into insignificance against the stories of others out there much less fortunate than I.

 

 

There is no need to apologise  Your problem may not be as serious as someones else problem, but, it is nonetheless significant for you.

Glad to read that things are moving for you.

atb

dave

User
Posted 10 Feb 2015 at 09:34

What a dafty you are.
Did you really think it necessary to apologise for feeling a bit down.
What do you think we are all here for eh?

EACH OTHER !!!!

Glad the situation is resolving itself.

I watched my other half coping with the severest constipation he has ever experienced following his Brachy so have an inkling of what you have been through.

Best Wishes

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 10 Feb 2015 at 12:51

Hi All,

  I should start off by saying that my experience was extremely rare (I understand) and no one should feel this is an common or likely side effect of RT but perhaps worth mentioning as all knowledge helps.

  I was a bit concerned about my ability for follow the bowl emptying regime as I have suffered from constipation from as far as I can remember, so I was quite keen to follow the requirements as outlined to me.

  I was warned , beforehand (as we are) to expect blood and mucus in my stools. So after the first week when what seemed copious amounts of blood appeared in the bowl I was a bit complacent, however it turned into a situation more like stools in my blood. So much that I was concerned about anemia.

  It turned into something a bit scary so I brought it to the attention of the staff and then followed various tests.

  The upshot was that it appeared to be haemorroids which I had previously been unaware of suffering from. However from that point the external symptoms of piles appeared 

The likely cause was that I had taken to the bowl emptying routine too enthusiastically. My  RT hospital had a policy of randomising the daily appoinments to ensure fairness so the routine had happen anytime between 07:00 and 18:00 depending on that day's appointment.

  I was taken off the dispensed enemas and changed my diet and it halted the deluge. I had one more bout of severe bleeding before the RT ended. 

  I was told that I would have a  Sigmography once things settled down post-RT but as often in the ways of these things, it never happened.  This diagnosis of haemorroids seems reasonable enough so I didn't chase it it.

  My RT was almost a year ago now and although the PSA results could be better, one positive outcome it that my constipation seems a thing of the past and I am now like clockwork! There is still the occasional small amount of mucus but I take that positively, as a sign that the RT is still working.

 

Not "Why Me?" but "Why Not Me"?
User
Posted 20 Mar 2015 at 18:37

Good day all,

Well it's now 6 weeks since I completed my RT and I have had a bad time of it since with Acute Radiation Proctitis and bowel incontinence. Waterworks are no problem.
I did finally manage to insert some Proctosedyl suppositories ( Hydrocortisone 5mg/Cinchocaine HCI 5mg.) suppositories as prescribed by my GP, who visited me at home. He also prescribed some Proctosedyl Ointment for external application. This seemed to resolve the pain and irritation post BM's but I was limited to using them for 7days max. I now get to have a sleep but have 'immediate' urges with little or no warning around 8am daily which then goes on for another 5 or 6 times until around 10am. Thereafter I have a few 'false alarms' or mixed mucous events. So as you may guess, all this has left me virtually housebound as I have nil confidence to venture out for more than hour and only then with a pair of 'Attends Pull-On' padded pants. No accidents recorded to date though...!

As a result of the above and in the hope that my bowel incontinence problem resolves itself, I have requested a couple of weeks postponement to my follow up appointment with my Oncologist

I decided to give Macmillan a ring today to seek their advice. I had a call back and chat with a very understanding Macmillan nurse today. She suggested I may need to consider Loperamide tablets ( Imodium) to slow the passage of my stool down the tract. I am a bit wary of this as I have used the stuff many times to relieve diarrhoea when working overseas and found it to be a generally rapid cure, however I found that it's use over a few days tends to lead on to constipation. That I do not want!

I will check with my GP before using Imodium.

Cheers

Tamtoot

User
Posted 05 Aug 2015 at 16:52

Hi,

Just thought I'd update this post because of a bit of a milestone.

Last month (July), was the first month I haven't suffered any bowel urgency accidents.  I really hope this means things are improving down there.  I'm keeping my fingers crossed.

I still get occasional bleeding (which is hard to stop because of heart meds), but far worse is the tiredness, and the feeling of not wanting to do anything (more to do with continuing HT rather than the effects of RT).

Good luck with your treatment, everyone.

Steve

 

 
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