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Chemo on the cards

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User

Posted 01 Dec 2014 at 23:45

Hi Allison & John,

That's wonderful news. I'm really pleased for you both. You can settle back and enjoy a really good Christmas. Enjoy every moment.

Steve x

User

Posted 02 Dec 2014 at 07:32

hey Allison and John this is great news. I follow your progress with keen interest as I think my PCa is on a similar trajectory. I know it will get there as it will one day for you too but to have a reprieve is just great, I love that feeling every four months I go. One day it will change but for now christmas looms and you can both have a great time. Good news on the site is so uplifting so really glad to read this.

User

Posted 02 Dec 2014 at 09:02

Allison, I am so very happy for you and John another reprieve and another wonderful Christmas, Now you can enjoy the time with your family even more.

See you on Thursday xx

Mandy Mo

User

Posted 02 Dec 2014 at 12:58

Fantastic news, Allison. So pleased for you and John !

Fiona. x

User

Posted 02 Dec 2014 at 13:01

Bloody great news, just the excuse i needed to have a beer with the crazy gang tomorrow http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

Si x

Don't deny the diagnosis; try to defy the verdict

User

Posted 02 Dec 2014 at 14:26

Great news best wishes to you both.

Carol x

User

Posted 02 Dec 2014 at 16:51

Hi Alison, havent been on line for a while and tend to be more inclined to read and send positive thoughts rather than replies. Relate to your situation as Bob diagnosed Oct 2010 with high Gleason score of 9. Were also still here 4 yrs on woohooo!!! Maybe starting not to respond to abireterone as PSA rising so maybe entering chemo route too. May you and hubby have a fabulous xmas and hope PSA stays stable a little longer for you.

Love Lesley x

User

Posted 02 Dec 2014 at 17:00

Hi Allison & John,

What fabulous news. Lynn and I are delighted to hear that John is 'trundling along' pretty darn well and still defying the odds!

Such relief all round, and now you can look forward to a really HAPPY Christmas and New Year.

I wouldn't put it past John to be still in the 'chemo queue' next time we meet at The Mill (June 2015).

Once again,

Great news, so happy for you both.

George

B2PCa

User

Posted 03 Dec 2014 at 19:43

So, so very happy for you both. What a wonderful Christmas this is going to be! Loads of love to you all xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 23 Dec 2014 at 21:42

Hi Allison,

Just read your posts , great news enjoy xmas and don't drink too much

User

Posted 23 Dec 2014 at 21:48

Nice to hear more good news Allison. The more the better, gives hope.

Enjoy the holiday.

Dave

User

Posted 23 Dec 2014 at 22:13

Gret news Allison.

Wishing you the best Christmas ever.

Enjoy that little granddaughter!

User

Posted 24 Dec 2014 at 20:19

Sorry for a question on a good post but I am gleeson 9 just diagnosed PSA dropping from 345 to 62 in 1 month but am starting chemo 13 jan, is the forum suggesting this is best left until after zolzdex stops working of as my consultant says bashing it every which way is good? He also told me to keep on running, I am doing the Brighton marathon In April but no idea how stupid that is as I can't find anyone on the inter web who has run more than 10 k on chemo, just as confused an probably naïveté as I was on day of diagnosis. Happy Xmas to all, Kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User

Posted 24 Dec 2014 at 22:22

Hi Kev

What your consultant says it what I beleive and that's why we were disappointed that chemo has been put back, it's made John feel vulnerable. For what it's worth I think your consultant is right.

Regarding the marathon, most people on hormones can barely run to the bottom of their road! No seriously, running is bound to be an excellent thing if you are able, so I'd simply just do what you can and wait and see how it goes if you look at the profile of one of our long term respondents Allahayes, you will find someone who kept playing rugby for a long time through various treatments. It may make you feel a little better.

Merry Christmas to you and my lovely frorum friends.

Love Allison .

User

Posted 25 Dec 2014 at 18:30

Yes, just do what you can, when you can! My OH is still fell walking with Advanced Metastatic, albeit it takes a bit longer. We had a lovely Christmas Day 6 miler up onto Ilkley Moor (we had hats tho!) to meet friends to drink mulled wine and eat Xmas cake!

Merry Christmas to all on the forum.

Glen

User

Posted 25 Dec 2014 at 22:32

Good on ya Glen and keep running Kev...don't let anyone or anything stop you doing what you want ti do

Bri

User

Posted 29 Dec 2014 at 02:19

Kev, I think once you start on the chemo and have had a couple of goes at it, you will be able to work out where in the cycle your marathon is going to fall and therefore whether it is at all possible. If the prep falls in the bad week, then you may not be able to take enough sustenance for your body to store energy properly.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 02 Jan 2015 at 22:53

Well we are getting into uncharted waters it seems. After a difficult Christmas and New Year's Eve we called the oncology department and they are arranging for an urgent appointment. The problem is a severe pain In the illiac bone (the flat bone at the back of the pelvis. He has a large met in this bone and it seems it's causing the issues. Mobility is a problem, getting up and down from the chair or bed is hard for John. Pain meds have been upped, though John is reluctant to take them, despite the pain.

So not sure what's next now, but John and I were not too happy about the chemo being deferred with a rising PSA and it seems we may have subconsciously known something was amiss.

So now we wait.

happy New Year

Allison xxx

User

Posted 02 Jan 2015 at 23:10

Allison

Hope John gets the necessary treatment asap. Waiting when you know something is amiss is very difficult to deal with.

All the best for the NY.

Paul

Stay Calm And Carry On.

User

Posted 02 Jan 2015 at 23:27

Did they say how quickly they might be able to see you Alison?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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